March 2013 Newsletter

LBDA Attends Parkinson’s Forum in Washington, DC

Two representatives from LBDA joined members of the Parkinson’s disease community from across America in Washington, D.C. at the end of February for the Parkinson’s Action Network (PAN) Forum. The goal of the meetings was to educate lawmakers about Parkinson’s disease, biomedical research funding and jobs at the state level, and why their votes on certain issues matter to people affected by Parkinson’s and related disorders. Read more.

New LBD Book Excerpt: Bedroom: Clear Out and Organize

Living with LBD by Judy Towne JenningsAs a physical therapist, Judy Towne Jennings, PT, MA relied on professional experience when her husband Dean was diagnosed with Parkinson’s disease. But looking back, she recalls many LBD symptoms were evident even before that. Going into uncharted territory together, Judy and Dean faced LBD’s many twists and turns. Judy’s experience as an LBD caregiver along with her practical caregiving tips are chronicled in her new book, "Living with Lewy Body Dementia." Read Judy’s suggestions on organizing a bedroom to make caregiving more efficient.

How do I Find an LBD Doctor?

This is one of the most frequently-asked questions we receive at LBDA. We have put together some practical tips to help LBD families find doctors with experience in diagnosing and treating LBD.

Signs of Elder Abuse: 5 Red Flags That Could Signal Neglect, Mistreatment, or Abuse

Have you ever worried whether an elderly person is really all right? Sometimes it's a loved one we're worried about -- we're concerned about whether she's being treated well by her caregiver, friends, or family members. Read more from

"Dad’s Not All There Anymore" by Alex Demetris, “Louie What?”

English graphic artist Alex Demetris is sharing part of his 28-page graphic novel, Dad’s Not All There Anymore, each month for February, March and April. It is based on Alex's family's experience of coping with his father’s LBD. Click on the image below to see this month’s panel.

If you would like to know more about Dad's Not All There Anymore, contact Alex through his web site.

Louie What? by Alex Demetris

© 2012 Alex Demetris, all rights reserved.

News You Can Use: First Appropriate Use Guidelines Published for Brain Amyloid Imaging in Alzheimer's

Only recently has it become possible to create high-quality images of the brain plaques characteristic of Alzheimer’s disease in living people through positron emission tomography (PET). Even so, questions remain about what can be learned from these PET images and which people should have this test.

To provide guidance for physicians, individuals and families affected by Alzheimer’s, and the public, the Society of Nuclear Medicine and Molecular Imaging and the Alzheimer’s Association have jointly published the first criteria for the appropriate use of this imaging technology to aid in the diagnosis of people with suspected Alzheimer’s disease. The criteria were published online as an article “in press” by Alzheimer’s & Dementia: The Journal of the Alzheimer’s Association and “ahead of print” in The Journal of Nuclear Medicine.

Learn more.