LBD Awareness Month is Here! | Lewy Body Dementia Association LBDA

LBD Awareness Month is Here!

From community block parties to benefit concerts, volunteers across the U.S. are showing their commitment and passion for A Month To Remember.  

Momentum for LBD Awareness Month started building over the summer with campaign volunteers' fundraising events like Steve Lamb's Tri-State Dog Show in Huntingdon, WV, Rita Oliver's Oakland Beach Cruise event in Warwick, RI and Tina Christie's participation in the Philadelphia Memory Walk.  Their dedication raised over $11,000 for the LBDA mission.  And Caroline Maynard was on the road in September to help those affected by LBD.  She ran her first half marathon in Westerly, RI in memory of her father-in-law, Frederick C. Maynard, Jr, raising over $6,000.  Thank you, Steve, Tina and Caroline for shining a light on LBD in your town!

Creativity abounds this year when it comes to events designed to raise LBD awareness, such as Sue Voegele's Pampered Chef party in Manheim, PA and Kimberly DeFilippis' community block party in Bolton, CT.  Other volunteers are challenging friends to sponsor them in road races across the country.  For example, Kris Antoniacci (Fort Lauderdale, FL) and Adam Malaty-Ur (Naperville, IL) are both running in the Chicago Marathon in memory of their fathers.  MaryKate Kelly (Milford, PA) is headed to Boston to run the Allan D. Morrison 5K Run/Walk in honor of her father.  

But awareness doesn't have to be town-wide.  Campaign participants are making  a difference without even leaving their neighborhood.  From garage sales to lemonade stands, adults and kids alike are introducing their neighbors to the existence of Lewy body dementia.  

And the first official LBDA Hub of Hope is (drum roll, please!)...

Meet Boston, MA, a powerhouse of LBDA volunteers!  Boston has three support groups for LBD families and together they have generated a remarkable amount of synergy in the last two years, including multiple awareness and fundraising events spearheaded by very passionate volunteers.  

This year for example, the Boston Hub of Hope members joined together to organize a by-invitation benefit concert, starring American operatic soprano, Ilana Davidson.   Victoria Ruff, has organized a public lecture on LBD by Dr. Stephen Gomperts of Harvard Medical School.  And last but not least, LBD families in Boston and beyond are eagerly awaiting October 15th, for the 3rd annual Allan D. Morrison 5K Run/Walk in Melrose, MA.  The race began as a tribute to Coleen Greco's father, Allan D Morrison, who ran the inaugural race; however, it quickly grew to wrap its arms around more than one dozen LBD families in the first year.  Coleen's race has raised over $70,000 in the past two years for LBDA and has built a sense of community and hope for those who have journeyed through this disease as a patient, loved one, caregiver, sibling, child, spouse or friend.  

It's not too late for you to participate!  

Like us on FaceBook for daily tips on raising awareness in your community.  Or download campaign materials for use in your community by visiting  What can YOU do to shine a light on LBD?