January 2015 Newsletter


Long-Term Care Helps Caregiver Enjoy Time with Husband

Former LBDA board member Tamara Real wants caretakers to understand the life-affirming joy that can come by spending quality time with your loved one when you leave the physical care to the professionals at an assisted-living facility. Read more.

More large-scale trails needed

International Dementia with Lewy Bodies Conference 2015

For the first time, a conference focused just on DLB will be held in the U.S. in Ft. Lauderdale, FL, next December. This conference will convene an international group of DLB experts as well as numerous other interested clinicians and scientists to focus on the early symptoms of the disorder. There will also be an educational program for patients and families with practical person-centered sessions. Read more.

LBD Story: Facing Tough Choices at the End of Life

Discussing end-of-life decisions can be painful for everyone, but should be done while a person is in the early stage of a terminal illness. LBDA Program Director Angela Taylor shares her experience with her father in hopes that other caretakers won’t have to make tough choices without their loved one’s guidance.

Daytime Sleepiness is More Common in DLB than AD

Drowsiness and daytime sleepiness are often described by individuals with dementia with Lewy bodies (DLB) and their caregivers. New research confirms that daytime sleepiness not due to poor sleep the night before is more likely to occur in DLB than Alzheimer’s disease (AD). Read more.


LBD Frequently Asked Question: When to Consider Antipsychotic Medications in LBD?

Hallucinations occur in up to 80% of people with LBD, but with the severe medication sensitivities, using antipsychotic medications can be a big concern. This month, LBDA highlights a publication from our library that answers the frequently asked question: “When is it appropriate to use antipsychotic medications?” Read “Treatment of Behavioral Symptoms: When to Consider Antipsychotic Medications in LBD” which provides guidance to families and professionals alike.

2015 Leg-It-for-Lewy

Leg-It-For-Lewy 5K Run/Walk 2015

Saturday, October 11, 2015, has been set aside for the second annual Leg-It-For-Lewy 5K Run/Walk. While the primary walk will be in the Atlanta area, you are encouraged to host an event in your home town. In response to the many requests we got for the first Leg-It-For-Lewy, we are exploring more ways for people to participate virtually. If you want to organize a run/walk for Lewy, please contact Stay tuned for more information!

Volunteer Corner

Volunteer Corner

Support volunteers provide help to caregivers in different ways each day. LBDA volunteers who are former family caregivers understand the challenges each new day presents. The monotony of routine is great for the loved one, but can take a toll on those who are caring for them. The following article, 10 Tips for Family Caregivers: 10 Steps to a New Beginning found on, provides tips for daily rejuvenation.