LBDA

Caregiving Briefs

If you’re a new LBD caregiver, or need a refresher on a particular topic, then our new Caregiving Brief series is just for you. Developed with the new caregiver in mind, this series covers a variety of every day caregiving topics. 

Each Caregiving Brief includes: 
* An overview of the topic
* Some helpful suggestions
* Links to additional resources

If there is a topic you’d like to see covered in this series, please let us know! Send your suggestion to lbda@lbda.org and put “Caregiving Brief request” in the subject line.

TOPICS:

NEW Genetics – Learn how much genetics do or do not play a role in who gets LBD.

Community Resources – From home meal delivery to adult day programs, every community offers a variety of services that can help families facing LBD.

Behavioral Symptoms – Changes in behavior in LBD are a common challenge for families. Start here to learn the different factors that may influence behavior.

Medications – A comprehensive treatment plan in LBD can improve quality of life for both the person with LBD and the family caregiver. But not every symptom warrants treatment all the time.
 

Coming soon in 2016:

Advanced Care Planning - The ‘goals of care’ may be slightly different to each person with LBD. Learn what they are early in the disorder and consider how they may evolve as the illness progresses.

Anesthesia and Hospitalization – Hospitals bring new challenges for a person with LBD, from anesthesia to increased confusion. Being prepared is half the battle.

Driving and LBD – Safety in driving is a common challenge in LBD from early in the disorder. Learn what can impact driving safety and who most frequently makes the decision it’s time put the keys away. 

Falls/mobility issues – From muscle rigidity to dizziness, falls are very common in LBD. Explore the causes of falls and tips to minimize the risk.

Managing Incontinence – Compared to other forms of dementia, incontinence can occur rather early in LBD. Routines and schedules are important tools when managing incontinence.

Person-centered care - Incorporating knowledge about an individual’s personality, preferences and history into daily care can help maintain a person’s sense of dignity and self-worth, as well as minimize care resistance.

Treatment of Behavioral Symptoms  - If a person with LBD has concerning changes in behavior, there are important steps to follow before considering antipsychotic medications that may have negative side effects.