August 2012 Newsletter

Starz “Boss” Kelsey Grammer Creates Public Service Announcement for LBDA

Golden Globe and Emmy winner Kelsey Grammer, star of the critically acclaimed Starz original series Boss, has just completed two public service announcements (PSA) for LBDA. Grammer portrays fictional Chicago Mayor Tom Kane, who last season was diagnosed with Lewy body dementia (LBD). The two PSAs — 30 and 90 seconds — will help raise awareness and support for LBD. The collaboration between Grammer, Starz Network and the Lewy Body Dementia Association underscores the critical need for early diagnosis and increased public awareness of this important health condition.

To obtain the PSA for network or web site play please contact Elizabeth Patrick,, 404.935.6444 ext. 101.

Watch the new PSAs and share on social media:

Longer Version

LBDA Webinar: Improving Oral Health by Managing Care-Resistant Behavior in Persons with LBD

Join us for a Free Online Webinar on Friday, September 7, 2012, 2:00 - 3:00 pm EDT. This webinar will address how LBD caregivers can better assist their family members with mouth care. The presentation will discuss the links between oral health and other health problems, such as pneumonia, diabetes, heart disease and strokes. For more information and to register online by clicking here.

New LBD Book: "Relentless Goodbye" by Ginnie Horst Burkholder

Ginnie Horst Burkholder was only in her 40s when she first felt that something wasn’t right with her husband Nelson. When Nelson had difficulty sleeping and performing tasks that once were second nature, they started looking for answers. She describes both the path to diagnosis and the ensuing journey in her book, "Relentless Goodbye: Grief and Love in the Shadow of Dementia."

You can read many of Ginnie's essays on the LBDA web site.

Risk Factors Identified for REM Sleep Behavior Disorder

REM sleep behavior disorder is a risk factor for disorders including Parkinson’s disease and Lewy body dementia that may precede those disorders by decades. Research now indicates that smoking, head injury, pesticide exposure, farming and lower levels of education may be risk factors for RBD. Read the full story from

Recent Studies Demonstrate Benefits of Cholinesterase Inhibitors in DLB

Two recent studies on the use of donepezil for dementia with Lewy bodies add to the strong case for cholinesterase inhibitor (ChEI) treatment in LBD. One study indicated that donepezil improves cognitive and neuropsychiatric symptoms in dementia with Lewy bodies (DLB), while also decreasing caregiver burden. The other demonstrates that people with DLB who do not demonstrate coexisting Alzheimer’s disease on certain brain imaging tests, are more likely to improve with ChEI treatment. Click here to learn more.

Meet LBDA’s New Volunteer and Programs Coordinator

LaToysa RooksWe are pleased to welcome LaToysa Scaife-Rooks to the LBDA team! LaToysa, who goes by the nickname Toy, brings 13 years of experience in public health education to LBDA. She has a master's degree in public health and is looking forward to meeting and working closely with all LBDA volunteers. In addition to volunteer coordination, Toy will be responsible for coordinating the LBD Caregiver Link and the Support Group network.

You can reach Toy at 404.935.6444 ext. 104 or at

LBD Caregiver of the Month

The Caregiver’s Voice is celebrating October LBD Awareness Month by awarding that special LBD caregiver. Nominations are due Sept. 10th — winner to be announced in October.