April 2015 Newsletter

2014 Volunteer of the Year

Each year, the Lewy Body Dementia Association (LBDA) honors individuals for their commitment to outstanding volunteerism and making a difference for families living with Lewy body dementias. The Volunteer of the Year Award recognizes one outstanding volunteer for their valuable and selfless commitment to innovation, dedication, contribution to the building of LBD awareness, and enhancement of the efficiency of the LBDA.

The 2014 Volunteer of the Year is Robert Bowles. Robert, a family man, retired pharmacist and man of faith is guided by his passion for dementia advocacy and his desire to help others along their journey with the disease. He speaks about LBD to community groups, physicians and pharmacists, he has organized fundraisers, and he mentors others who have dementia – both in person and online. Congratulations Robert!

LBDA calls for higher dementia care, support and research funding

LBDA, along with 93 LEAD Coalition member organizations, wrote to the U.S. House and Senate appropriations leadership in March, calling for increased funding for dementia research, as well as care and support services. In addition to funding levels for the National Institute on Aging (NIA) and the National Institutes of Health (NIH), the letter proposed an aggressive ramp-up of $2 billion for dementia research at the NIH. This ramp-up proposes a doubling of funding available for dementia research over the fiscal year 2015 budget.

This degree of funding is urgently needed in order to implement strategies recommended in the National Plan to Address Alzheimer’s Disease (NAPA). The recent annually updated NAPA report includes a research strategy for Lewy body dementias, the implementation of which hinges on significant increases in federal funding.

To read the sign-on letter, click here.

LBDA Joins LEAD Coalition

LBDA is proud to announce its new membership in Leaders Engaged on Alzheimer’s Disease (LEAD), a national coalition of over 70 member organizations with a vested interest in Alzheimer’s disease and related dementias. By joining LEAD, LBDA has increased its ability to highlight the impact of LBD on individuals, families and society to government, nonprofit and for-profit sectors.