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July 3, 2024

Compass for Care: Online Programs for Caregivers

What is this study about?

This study is testing online programs focusing on well-being and safety, designed to assist care partners of friends or family with Lewy body dementia (LBD), Alzheimer’s, or a related dementia.

What’s involved?

All participation is virtual and there are no in-person visits. Care partners will be asked to:

  • Complete 4 online surveys over a 9-month period. Each survey should take about 10 minutes.
  • Use an online program, over the course of 3 months. Daily activities should take no more than 3 minutes a day and care partners can choose to complete as few or as many activities as they would like.
  • Read text or email messages daily for 3 months.

The activities and text or email messages are focused on either the topic of well-being or safety. The total time commitment over the 9 months is about 1-3 hours.

Who can participate?

An individual may be able to take part in the study if they:

  • Are a care partner of a friend or family member of a person with Lewy body dementia, Alzheimer’s, or a related dementia
  • Provide at least 8 hours of care per week
  • Have been a care partner for at least 3 months
  • Are willing to receive daily messages by text or email for 3 months
  • Speak English
  • Have access to the internet
  • Live in the U.S.

Study Funder

National Institutes of Health (NIH)

For more information

Interested care partners are asked to email the study team at [email protected] to receive a link to a brief online screening survey.

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