LBD Story: Facing Tough Choices at the End of Life
By Angela Taylor, Director of Programs When a loved one is nearing the end of life from a disease like Lewy body dementia, emotions run strong, and confusion can overtake […]
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Caregiver Balance: Learning the Hard Way
By Angela Taylor LBDA Director of Programs My father was a retired engineer with a love of family, golf, and buddies from his Air Force squadron. I became his caregiver […]
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How Did We Reach This Point?
It’s April 1, 2010, and we are sitting in the neurologist’s office waiting for the results of the flurry of tests that James (Jim) my husband had been through in […]
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Four Lessons
I’d barely begun to look over my patients’ charts after receiving the night shift report when my nurse aide said, “Pick up on line 2—daughter on the phone. Wants to […]
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Volunteer Corner: Caring for an Ideal Mom
“She was the ideal Mom,” says Robert Doheny of his mother, Patricia. “She was loving and caring, and very vested in her family. She was always there to lend a […]
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Loving Through Lewy
By Jane Matfin John and I met on a blind date on November 4, 1995. I had been married before and John had broken from a long term relationship; we […]
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The Fearless Caregiver Manifesto
By Gary Barg I will fearlessly assess my personal strengths and weaknesses, work diligently to bolster my weaknesses and to graciously recognize my strengths. I will fearlessly make my voice […]
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The Stream
My Robert is dead. Lewy body dementia. Thirty-three years gone without my knowledge, or permission. People’s voices echo in my ransacked head. I smile and thank them, pushing polite, memorized […]
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