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June 2010 Newsletter

LBDA and ADDF Award Biomarker Research Grant

The Alzheimer's Drug Discovery Foundation and the Lewy Body Dementia Association have awarded their first grant through the Lewy Body Dementia Biomarker Research Program. The ADDF/LBDA program awarded $125,000 to Lawrence Honig, M.D., of Columbia University in New York. The goal of the program is to encourage the discovery of innovative biomarkers that aid in early diagnosis, detection and disease monitoring of Lewy body dementias. Click here to learn more about the award.

A Special Way to Honor Her Father

In honor of her father, who has Lewy body dementia, LBDA Program Director Angela Taylor organized a Father's Day Fundraiser by creating a personal giving web page to help raise awareness and support for families affected by LBD: www.firstgiving.com/angelataylor

To see how you can create your own personal giving page in honor or in memory of a loved one, visit www.firstgiving.com/lbda, or click here for 10 Simple Steps to Creating a Firstgiving Page.

Virtual Support Group Organized for Male Caregivers

LBDA board member Steve Lamb has founded a virtual support group for men who are caring for a loved one with Lewy body dementia. The group meets by teleconference and is available to anyone with access to a phone. Male caregivers who have difficulty traveling to a local support group are invited to call in and join the discussion. The group meets the second Thursday of each month from 8 p.m. to 9 p.m. Eastern time. Details, including contact phone numbers, are provided here.

Volunteers Step Up with Special Events

So much of what LBDA does to support families with Lewy body dementia is due to the hard work of its dedicated volunteers. A big thank you goes out to the following event organizers and to everyone who participated in events this Spring to benefit LBDA!

  • Lewy Body Dementia Association Tennis Fundraiser - Organized by Ryan Wuesthoff in memory of his grandfather Ray Wuesthoff, the event was held in March in Mahwah, N.J. Ryan surpassed his fundraising goal and collected an impressive $6,245! Thank you, and way to go Ryan!
  • Reading Half Marathon - In memory of his father, Michael Berzon, Monty Berzon ran an impressive 13.1 miles in the Reading, U.K., marathon in March, raising $1,022 for LBDA! Thank you and congratulations Monty!
  • The Big Murder Mystery Broadcast of 1943 - LBDA volunteer and professional soprano Ilana Davidson appeared in a play with An Beal Bocht Radio Workshop Players last month in the Bronx, N.Y., raising $500 for LBDA. A job well done Ilana!

To learn more about planning a special event, call Kim O'Tool at 404-935-6444, ext. 100, or e-mail us at specialevents@lbda.org