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Essays on LBD Caregiving

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Isn’t all of life lived in advent – waiting, watching, longing for that meeting with God?

Chuck was a good teacher. He never stopped teaching, and he made sure I learned what I needed to know.

Many times I have wanted to walk away. But how do you walk away from Don Quixote?

You must use common sense when deciding to take your loved one off the road. One suggestion for you to consider is the grandchild test.

One of the many difficulties associated with caregiving is that you will tend to disappear. The person you are caring for may be belligerent, ungrateful, treat you as though you were still the child. Deep down you know that they have no malicious intent. 

Streams of light penetrate the fog at yet higher angles, shifting the picture as if to announce new possibilities. Nothing stays the same it tells me.

Gradually I have come to realize that my heart will always say “no,” and it is time to listen to the voice in my head that is saying, “I can’t do this anymore.”

I want to snip away the indignant threads that wrap around my insides so that I too can be free.

As the caregiver, I had to start over by redefining who I was in the marriage relationship. The progressive dementia meant that this process would be one-sided, would constantly be shifting, and would always move toward greater loss.

A volunteer is called to advocate for Lewy body dementia 10 years after losing his mother to the disease.