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Essays on LBD Caregiving

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As I spoke my fears aloud, my voice for speaking back became stronger. “You don’t have to do it alone. You do matter. You will be ok. You will figure it out. You have more strength than you know. You have options you haven’t thought of. You will find a way. You are loved.”

I’m learning to live in a divided place where faith and doubt constantly collide, where hope and despair live side by side, where joy and sadness are expressed back-to-back, where love and fear walk hand-in-hand.

Maybe she, who understands my struggle with aging, illness, and loss, is here to share a little solace while we wait for greater faith and hope. Maybe together we will find our hope strengthened.

During my 15 years of caregiving, I would often wonder, what is the hardest thing I'm facing?

How do you cope without the perks of marriage nor a single life?

Nelson is hidden so deeply in the Lewy body maze that at times I think we’ve lost him. But now and again I get to enjoy a moment of clarity through the haze.

When the stress of driving to a Lewy body dementia support group becomes too much, a caregiver starts one closer to home.

A friend told me that I wouldn’t stop being a caregiver when Nelson went into a nursing home. She was right.

Traveling and books defined Ron, two things that have been stolen by Lewy body dementia.

Don't just pray for me. I need something more.