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Words of Wisdom

by Dorie Jordan 

LBD Families Tell Their Stories: Words of Wisdom

My story begins around 1999, when I began to realize through many doctor visits that I had all the symptoms of early onset Parkinson's disease. Around the same time, my husband Larry began the same search for what was wrong with him, and we found out in 2000 that I had Parkinson’s and eventually that he had Lewy body disease. Only 55 and 58 now, and there we were eight years ago at 47 and 50 with these horrible illnesses. Larry is now in a nursing facility and has been receiving excellent care, but it has been extremely hard dealing with the strain of seeing him gradually progress downhill, now to the point of my not being able to understand most of his speech. To those of you who are beginning on this road, let me say that the most important thing is to focus on the positive and not worry at all of the little things. I would give everything and anything to have my husband back to even the point he was at a year ago. Cherish every moment!

by Dorie Jordan