Press Releases

LBDA Answers the Question: What is Lewy Body Dementia?

ATLANTA (MAY 16, 2014)—Casey Kasem’s heartbreaking diagnosis of Lewy body dementia is all over the news.  The Associated Press reports Kasem, 82, had previously been incorrectly diagnosed as having an advanced form of Parkinson's disease. But what is Lewy body dementia and why might it misdiagnosed as Parkinson's or Alzheimer's disease? 


Tenacity, Love, and Self-Sacrifice… 

Patience and Kindness and All That’s Nice—

That’s the Stuff that Heroines Are Made Of

ATLANTA (MAY 5, 2014)—Today, the Lewy Body Dementia Association (LBDA) announces, as an extension of its Lewy Who? awareness campaign, a month-long salute to and continued support for Mom-Partner-Caregivers of family members with Lewy body dementia.  Affecting more than 1.3 million Americans, Lewy body dementia (LBD) is the most misdiagnosed form of dementia and, following Alzheimer’s disease, is the second most common cause of progressive dementia.   So, why recognize moms?  Because LBD is slightly more common in men than women, compared to Alzheimer’s disease, which is more common in women than men.  And, typically, the spouse or an adult daughter becomes the primary caregiver—a survey of LBD caregivers by LBDA revealed that 88 percent of respondents were women.  

“We’re Knocking on Cyber Doors to Save Lives”


ATLANTA (April 14, 2014)—Today, if you hear, “Knock, knock,” on your cyber door, be sure to answer, “Who’s there?”  You’ll hear Whoopi Goldberg say, “Lewy.“  To which you respond, of course, “Lewy who?”  Glad you asked.  The Lewy Body Dementia Association (LBDA) launched this month an awareness campaign – “Lewy Who?” – to educate the public about Lewy body dementia (LBD), the most misdiagnosed form of dementia and, following Alzheimer’s disease, the second most common cause of progressive dementia.  

Whoopi Calls for Clicks from Bloggers, Reporters, Writers and Individuals Everywhere to Share Potentially Lifesaving Information about LBD 

ATLANTA (APRIL 7, 2014)—“Hey, it’s Whoopi!”  Whoopi Goldberg, you ask?  The Oscar-winning actress who starred in The Color Purple with Oprah Winfrey and in Ghost with Patrick Swayze and who stole our hearts in the Sister Act? Yes, that Whoopi Goldberg!  With the same Whoopi passion she brings to the big screen, today, Whoopi delivers a serious new message on video for families concerned about loved ones with memory loss or confusion and movement, behavior and sleep problems.  Together with the Lewy Body Dementia Association (LBDA), Whoopi “calls for clicks”— with one click of the mouse, in just one or two minutes, right now, you may help someone for a lifetime.