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October 2010 Newsletter

It's Time to Write to your Senator!

Great news! Congress has heard your requests and the House of Representatives unanimously passed H.R. 1362, the National Neurological Diseases Surveillance System Act! This system will provide researchers and epidemiologists with a coordinated system of health data on neurological diseases and should fuel further research into neurological disorders like LBD. To make this data system a reality, the Senate must now take action on S. 1273. Please urge your Senators to support Senate passage of S. 1273 this Congress. Click here to tell Congress about LBD today!
 

Local Dog Show to Benefit LBDA

Steve Lamb, a member of LBDA's Board of Directors, wanted his LBD awareness and fundraising event to stand out from a crowd of other community activities. So he decided to put together a dog show to benefit the Lewy Body Dementia Association. The LBDA Charity Dog Show is on Saturday, Oct. 9th from 9:00 a.m. to 12:00 p.m. at Pullman Square in Huntington, WV. All breeds are welcome, including pedigree, non-pedigree and mixed breed family pets. Registration details are available on LBDA's website.

LBDA's A Week To Remember is only one week away!

Downloadable resources are ready for your use in raising LBD awareness with your community's media, organizations, physicians, long term care communities, and more! Visit www.lbda.org/go/awareness today!

News You Can Use — Federal Resources

Social Security Disability Webinar - On Wednesday October 6, 2010, at 2:00 p.m. EDT., Social Security will host a free, national webinar to discuss the enhanced online disability application. The application is designed to reduce the time it takes to file for disability benefits. To RSVP for the webinar, please visit the Social Security Administration's website.

VA Special Pensions Aid and Attendance - LBDA volunteers help lead LBD families to a wide variety of resources. Miles Hurley, an elder law attorney and member of LBDA's Board of Directors, shares his professional experience of helping someone with Parkinson's disease dementia (one form of LBD) obtain special pension benefits from the Veteran's Administration (VA). Read Miles' story and download a free guide entitled Nuts & Bolts of VA Benefits for the Aged.

Transportation Screening and Disabilities - The Transportation Security Administration has recognized that some individuals need a discreet way to communicate with Transportation Security Officers (TSO) that they have a disability, medical condition or medical device that might affect their screening. In response, the TSA is offering a disability communication card that can be downloaded, printed and handed to the TSO. The card cannot be used to exempt an individual from screening, but allows a private means to inform the TSO and reduce delays in airport security. Access the disability communication card here.