November 2012 Newsletter

"Finding Hope in the Midst of Despair: My Decade with Parkinson's Disease and Lewy Body Dementia," by Dr. Thomas Grayboys

Living for 10 Years with Parkinson’s Disease (PD) and Lewy Body Dementia (LBD) author Thomas B. Graboys, M.D. recounts the various losses — physical, emotional, social and intellectual — that ultimately add up to a loss of self inflicted by these progressive neurological diseases. No longer able to practice medicine, participate in athletics, or engage fully with his extended family, soon to include 11 grandchildren, Graboys nevertheless writes that there is one aspect of self that PD and LBD cannot steal: the soul. Read the complete article.

Georgia Gives Day, December 6, 2012

Geogria Gives LogoLBDA is proud to partner with the Georgia Center for Nonprofits for Georgia Gives Day on December 6, 2012. Georgia Gives Day is an initiative to empower nonprofits to deliver greater impact and enhanced services in our communities by increasing individual philanthropic giving in Georgia and raising awareness of the state’s nonprofit sector. Georgia Gives is a statewide initiative that focuses the attention of the public on the work and worth of nonprofits. Click here to learn more and to donate.

From "Be Brave: A Wife’s Journey Through Caregiving," by Florrie Munat (unpublished) Excerpt from Chapter 4: “That’s Echolalia”

Florrie and Chuck MunatAfter he suffered an ischemic stroke, Chuck Munat spent three weeks in a Seattle hospital. At that point he had not been diagnosed with LBD, so we assumed we were dealing only with stroke recovery. Physical recovery came quickly. Cognitive recovery was bafflingly slow. Keep reading

Visit Florrie's web site.

Chronic Pain Management in People With Dementia Complicated
By Carol Bradley Bursack, Health Guide

The combination of chronic pain and dementia is difficult to manage. While advancing dementia can render an elder heartbreakingly vulnerable, chronic pain that can’t be expressed in words by the person with dementia multiplies the difficulty of compassionate care. Read more.

Celebrate National Memory Screening Day

November 13, 2012 is National Memory Screening Day! The Alzheimer’s Foundation of America organizes memory screenings throughout the US. Click here to find a screening site near you or to sign up as a memory screening site.

News You Can Use: Understanding Medicare Prescription Drug Open Enrollment

If you have Medicare, you may already know that this is the time of year when you can change or enroll in Medicare’s prescription drug plan, called “Part D.” The annual enrollment period runs October 15 – December 7, 2012. Each year, the plan’s costs and benefits are updated and it is important to review the available options. Coverage begins for enrollees in January 2013.

To learn more, check out Medicare Prescription Drug Plan Annual Open Enrollment: Questions & Answers, which was co-sponsored by Parkinson’s Action Network and distributed by Medicare Access for Patients Rx (MAPRx). And visit for information about enrolling or changing prescription drug plans.