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November 2010 Newsletter

As Thanksgiving approaches, LBDA has so many reasons to be grateful this year. Because of YOUR support, we are making bigger strides in our mission than ever before!

Building Hope: Awareness Campaign Reaches Millions

With two more months to go in the campaign, we're making great gains in LBD awareness! Thanks to the tireless and creative efforts of campaign volunteers, hundreds of medical professionals across the country received LBDA materials for their practice, and LBD awareness events took place in 34 US cities and 6 locations outside the US and. (Catch the excitement from the wide variety of events held during A Week To Remember by clicking here!) And as many as 11 million viewers may have learned about LBD for the very first time via 3 different network television shows, as a direct result of our campaign!

The next part of our campaign is easy and takes less than 10 minutes – we would like you to participate in our LBD Awareness Campaign Survey! The feedback you share about this year's campaign will be used to help measure this year's success and plan an even better campaign for next year.Click here to take the survey today!

On behalf of LBDA's Board of Directors, staff and LBD families we serve, THANK YOU to the many volunteers who are already making the first, national, grass roots LBD awareness campaign a great success!

Increasing Knowledge: Your support is bearing great fruit this year!

With your help, LBDA has been able to do more this year than ever before. Here are a few highlights of the remarkable gains made so far in 2010.

  • Our first scientific conference, Biomarkers in Lewy Body Dementias, was held in Washington, D.C.
  • A third research paper was published on the impact of LBD on family caregivers
  • LBDA released its newest report, "Caregiver Burden in LBD"
  • We launched LBDstories.com to help put real faces and stories of LBD in the public eye
  • The LBDA support group network continued remarkable growth
  • We successfully launched the first national grassroots LBD awareness campaign

Sharing Experience: Nominations Needed for Volunteer of the Year

We want to hear inspiring stories about LBDA volunteers in action! We are proud to honor the outstanding contributions of our volunteers nationwide by calling for nominations for the 2010 Volunteer of the Year Award. This award recognizes a volunteer who has provided extraordinary service in their role as an LBDA volunteer in 2010. Nominate someone and help us recognize the efforts of hardworking individuals who have gone above and beyond the norm to care for our LBD families. To learn more or to make a nomination, click here.

Building Hope: News You Can Use

As attention on LBD and other neurological diseases increase, so do resources and research gains. LBDA's website is a great place to find research news and resources. Visit our News Articles page to read recent news stories such as:

  • NYC clinic specializes in Lewy body dementia care
  • Parkinson's Progression Markers Initiative launched
  • Major Alzheimer's neuroimaging initiative launches next stage
  • Dementia caregivers needed for study on educational website

Gift Ideas for the Holidays

For caregivers: Helen and Jim Whitworth have authored a new book on LBD, A Caregiver's Guide to Lewy Body Dementia. This book replaces their first book, Riding the Roller Coaster with Lewy Body Dementia. Learn about this new educational resource and others on LBD and dementia caregiving at lbda.org.

For people with dementia: As a caregiver for someone with dementia, you may be wondering what gift to give your loved one for the holidays. Read The Gift of Music for the Holidays to learn how singing can play a role in improving mood in dementia.

Meet the Newest Members of the LBDA Team

LBDA is proud to introduce the newest members of our staff and Board of Directors.

Eva Bradley joined LBDA's staff recently as our Special Events and Volunteer Coordinator. Eva is a 2008 graduate of Emory University and recently served as Program Outreach Coordinator for Park Pride, a nonprofit organization empowering community-based volunteers to increase parks and green space in the City of Atlanta. Eva provides direct support to all LBDA volunteers who are organizing community-based events and is the point of contact for all new LBDA volunteers. Eva can be reached directly at ebradley@lbda.organd at 404.549.4248.

Mike Koehler is the newest member of LBDA's Board of Directors after serving in an advisory capacity for several years. Mike brings expansive experience in working with two of the world's largest not-for-profit professional organizations, including the American College of Physicians. His career includes many years of experience in consumer, business to business, and healthcare publishing, as well as the continuing medical education arena. Mike is a Senior Partner at Acknowledgment Design Studios.