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Local LBD Support Groups

Seeking support? Connect with individuals, families and caregivers who are seeking support during life's challenging times. With support groups in over 30 states and internationally in Canada, connecting with other caregiver provides valuable and trusted resources and information for LBD families. We provide free, confidential support in a group setting to anyone affected by LBD—whether you are an LBD caregiver or are a loved one, friend, or professional caregiver of  someone diagnosed. 

If you are a loved one caring for a loved one and there is no local support group in your area or you can’t get to a support group meeting due to your caregiver responsibilities, please connect in our virtual support groups.

LBDA Virtual Support Groups

To find a support group in your local area, select your state's two letter abbreviation from the drop down menu and click apply.  (If no groups are listed, consider launching one in your community.  Click here to become a volunteer.)

Local LBD Support Groups

Long Island Area Support Group

When: Once A Month , 7:00 p.m – 8:30 p.m.

Who: Lewy body dementia caregivers.

Location: Nassau County; call for location.

Address: Nassau County; call for location. Lynbook, NY 11563

Contact:

Norma Loeb
646.248.9292
normalanne@gmail.com

Category:

General: facilitated by a caregiver/peer
New York Metro Area Support Group

When: Second Tuesday of every month, 12:30 p.m. – 2:00 p.m.

Who: LBD caregivers.

Location: Manhattan; call for location.

Address: Manhattan; call for location. Manhattan; call for location., NY 10018

Contact:

Norma Loeb
646.248.9292
normalanne@gmail.com

Category:

General: facilitated by a caregiver/peer
Mid-Ohio Dementia–Related Diseases (LBD, Alzheimer’s Disease, PDD) Education and Support Group

When: Third Tuesday of every month, 7:00 p.m. – 8:30 p.m.

Who: Family, friends and care providers of loved ones with dementia-related diseases.

Location: Our Saviors Lutheran Church

Address: 725 East Eliza Street Kenton, OH 43326

Contact:

Melody Hampton
937.354.3322 or 419.674.7345
hampt0ns@embarqmail.com

Category:

General: facilitated by a caregiver/peer
Northwest Ohio Dementia-Related Diseases (LBD, PDD, Alzheimer's Disease) Support Group

When: Third Thursday of every month, 7:00 p.m. – 8:30 p.m.

Who: Caregivers, family, and friends of those with dementia-related diseases.

Location: Hilty Memorial Home, Conference Room

Address: 304 Hilty Drive Pandora, OH 45877

Contact:

Ruth Ann Grismore
419.634.2282
frgrismore@embarqmail.com

Category:

General: facilitated by a caregiver/peer
Edmond Santa Fe Dementia Caregivers Support Group

When: Second Monday of every month, 7:00 p.m. – 8:30 p.m.

Who: For caregivers and family members of those diagnosed with Lewy Body Dementia, Alzheimer’s Disease and other types of dementia.

Location: Santa Fe Presbyterian Church

Address: 1603 North Santa Fe Edmond, OK 73003

Contact:

Cindy Thomas
405.715.9954
Cynthia-thomas@ouhsc.edu

Category:

Professional: facilitated by a professional at an advocacy organization, long-term care facility, or other group
Alzheimer Society of Toronto Lewy Body Family Support Group

When: Second Wednesday of every month 4:30 p.m. – 6:00 p.m.

Who: Family members of those diagnosed with Lewy body dementia.

Location: Alzheimer Society of Toronto

Address: 20 Eglinton Avenue West, 16th Floor Toronto, ON M4R 1K8

Contact:

Christine Leskovar
416.322.6560, ext.6304
cleskovar@alzheimertoronto.org

Category:

Professional: facilitated by a professional at an advocacy organization, long-term care facility, or other group
Kingston Lewy Body Dementia Support Group

When: Second Thursday of every month, 7 p.m. - 9 p.m.

Who: For caregivers of people with Lewy body dementia.

Location: The Royal George

Address: 5 Gore Street Kingston, ON K7L0A1

Contact:

Peggy Brown
613.766.1943
maggystillyoung@yahoo.ca

Category:

General: facilitated by a caregiver/peer
Portland Area Lewy Body Support Group

When: Second Saturday of the month 1:00-2:30PM

Who: Caregivers and loved ones of those diagnosed with Lewy Body Dementia

Location: GenTog

Address: 11535 SW Durham Road (off Highway 99 across from the Albertson’s store) Tigard, OR 97224

Contact:

Kathy Teyler Jarrett
503-639-2600
kteylerjarrett@comcast.net
Tony Borcich, Co- Facilitator

Category:

General: facilitated by a caregiver/peer
Professional: facilitated by a professional at an advocacy organization, long-term care facility, or other group
Bucks County Lewy Body Dementia Support Group

When: Third Tuesday of every month, 1:30-3:30

Who: For caregivers, family members, and friends experiencing the daily struggles of LBD.

Location: The Manor at York Town

Address: 2010 York Road Jamison, PA 18929

Contact:

Cammy Frazier
215.766.8929
camcat65@verizon.net
Home Instead Senior Care Plumsteadville
215.766.1617

Category:

General: facilitated by a caregiver/peer
Susquehanna Valley Lewy Body Dementia Support Group

When: First Tuesday of every month, 7:00 p.m. - 9:00 p.m.

Who: For caregivers, family members, and friends experiencing the daily struggles of LBD.

Location: St Peter's Lutheran Church

Address: 10 Delp Road Lancaster, PA 17601

Contact:

Sandy Smith
717.285.2579
meadowview@embarqmail.com
St Peter's Lutheran Church
717.569.9211

Category:

General: facilitated by a caregiver/peer