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Local LBD Support Groups

Seeking support? Connect with individuals, families and caregivers who are seeking support during life's challenging times. With support groups in over 30 states and internationally in Canada, connecting with other caregiver provides valuable and trusted resources and information for LBD families. We provide free, confidential support in a group setting to anyone affected by LBD—whether you are an LBD caregiver or are a loved one, friend, or professional caregiver of  someone diagnosed. 

If you are a loved one caring for a loved one and there is no local support group in your area or you can’t get to a support group meeting due to your caregiver responsibilities, please connect in our virtual support groups.

Men’s-Only Lewy Body Dementia and Related Dementias Virtual Support Group

To find a support group in your local area, select your state's two letter abbreviation from the drop down menu and click apply.  (If no groups are listed, consider launching one in your community.  Click here to become a volunteer.)

Local LBD Support Groups

Minnesota East Metro LBD Caregiver Support Group

When: Third Monday of every month, usually at 6:30 p.m.

Who: Caregivers and family members of those facing a diagnosis of Lewy Body Dementia. We provide a comfortable and compassionate place to share experiences, support, and resources as we journey with our loved one through the many phases of this disease.

Location: Lakeview Commons of Maplewood

Address: 1200 Lakewood Dr. N. Maplewood, MN 55119

Contact:

Directions and General Information
651-773-7150
Paula Biever
651-641-0130
paula.biever@gmail.com
Erik Biever
651-641-0130
ebiever@gmail.com

LBDA Affiliate: Yes

Princeton Area Caregivers Support Group

When: First Tuesday of every month, 1:00 p.m. - 2:30 p.m.

Who: For caregivers and family members of those diagnosed with Lewy Body Dementia, Alzheimer’s Disease, Parkinson’s Disease, and other dementias or neuro-degenerative diseases. The support group also welcomes caregivers who have lost someone to these diseases, and who would like to share their experiences with support group members or who would like ongoing support for themselves.

Location: Elim Care and Rehab Center

Address: 701 1st Street Princeton, MN 55371

Contact:

Carolyn Stabene
763.631.0212
cstabene@yahoo.com
Phyllis Sueverkruepp
763.389.3251

LBDA Affiliate: Yes

Roseau Alzheimer’s/LBD Awareness and Support Group

When: Second Wednesday of every month, 6:30 p.m. – 8:00 p.m.

Who: Caregivers and family members who have a loved one with Lewy body dementia, Alzheimer's disease, or any other dementia.

Location: Roseau Masonic Lodge

Address: 711 Second Avenue SE Roseau, MN 56751

Contact:

Jill Wulff
218.425.7401
jill.wulff@alz.org

LBDA Affiliate: Yes

Southwest Metro Minneapolis Caregiver Support Group

When: Second Monday of every month, 12:00 p.m. – 2:00 p.m.

Who: For families facing a diagnosis of LBD and health care professionals working with persons with LBD who want information and support.

Location: Gianna Homes

Address: 4605 Fairhills Road East Minnetonka, MN 55345

Contact:

Anne Marie Hansen
952.988.0953
anne@giannahomes.org

LBDA Affiliate: No

St. Paul Memory Loss Caregiver Support Group

When: Fourth Tuesday of every month. Two options available: Daytime: 10-12 noon or Evening: 5:30-7:30 p.m

Who: Caregivers and family members of those facing a diagnosis of Dementia including Lewy Body Dementia. During the support/educational group time, no-cost respite on-site is provided for the person with LBD if requested.

Location: Bethesda Hospital- Outpatient Services B-Level

Address: 559 Capital Blvd. St. Paul, MN 55103

Contact:

Tanya Rand, MSW LICSW
651.232.2202
tjrand@healtheast.org

LBDA Affiliate: Yes

Twin Cities Metro Area Atypical Parkinson's Disease Support Group

When: Second Wednesday of every month, 1:00 p.m. – 3:00 p.m.

Who: Anyone diagnosed or caring for someone diagnosed with a Parkinson's disease spectrum disorder, including Lewy body dementia, progressive supranuclear palsy, and multiple systems atrophy.

Location: Struthers Parkinson's Center

Address: 6701 Country Club Drive Golden Valley, MN 55427

Contact:

Joan Hlas
952.993.6650
Joan.Hlas@ParkNicollet.com

LBDA Affiliate: Yes

Twin Cities Metro Area Caregiver Support Group

When: Second Thursday of every month, 1 p.m. – 3 p.m.

Who: Caregivers of those living with movement disorders, including Lewy body dementia, Parkinson's disease.

Location: Struthers Parkinson's Center

Address: 6701 Country Club Drive Golden Valley, MN 55427

Contact:

Joan Hlas
952.993.6650
Joan.Hlas@ParkNicollet.com

LBDA Affiliate: Yes

Twin Cities Southeast Metro Caregiver Support Group

When: Second Thursday of every month, 6:30 p.m. – 8:30 p.m.

Who: Caregivers and family members who have a loved one with Lewy body dementia, Alzheimer's disease, or any other dementia.

Location: Peaceful Mind Homes

Address: 3808 Blackhawk Ridge Place Eagan, MN 55122

Contact:

Kam Aggarwal
651.538.4499
Kam@peacefulmindhomes.com

LBDA Affiliate: No

Warroad Community Support Group

When: Third Thursday of every month, noon – 1:30 p.m.

Who: Caregivers and family members who have a loved one with Lewy body dementia, Alzheimer's disease, or any other dementia.

Location: Warroad Senior Living Center

Address: 1401 Lake Street Northwest Warroad, MN 56763

Contact:

Jill Wulff
218.425.7401
jill.wulff@alz.org

LBDA Affiliate: Yes

Crystal Coast Lewy Body Dementia Support Group

When: Second Monday of each month, 1:00 p.m. - 3:00 p.m.

Who: For caregivers and family members of those diagnosed with Lewy Body Dementia.

Location: Leon Mann Senior Center

Address: 3820 Galantis Drive Morehead City, NC 28557

Contact:

Barbara Hutchinson
252.269.9748
bbhutch44@yahoo.com

LBDA Affiliate: No