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Local LBD Support Groups

Seeking support? Connect with individuals, families and caregivers who are seeking support during life's challenging times. With support groups in over 30 states and internationally in Canada, connecting with other caregiver provides valuable and trusted resources and information for LBD families. We provide free, confidential support in a group setting to anyone affected by LBD—whether you are an LBD caregiver or are a loved one, friend, or professional caregiver of  someone diagnosed. 

If you are a loved one caring for a loved one and there is no local support group in your area or you can’t get to a support group meeting due to your caregiver responsibilities, please connect in our virtual support groups.

Men’s-Only Lewy Body Dementia and Related Dementias Virtual Support Group

To find a support group in your local area, select your state's two letter abbreviation from the drop down menu and click apply.  (If no groups are listed, consider launching one in your community.  Click here to become a volunteer.)

Local LBD Support Groups

Northwest Louisiana Lewy Body Dementia Caregiver’s Support Group

When: Fourth Tuesday of every month, 2 p.m. – 3:30 p.m.

Who: Family and friends of people with LBD.

Location: Hospice of Shreveport/Bossier

Address: 3829 Gilbert Drive Shreveport, LA 71104

Contact:

Grace Holcombe
800.824.4672
gragra02@att.net

LBDA Affiliate: No

Central Massachusetts LBD Caregivers Support Group

When: First Wednesday of every month, 6:30 p.m. – 8:00 p.m.

Who: Caregivers and families of people diagnosed with Lewy body dementia.

Location: Southgate at Shrewsbury

Address: 30 Julio Drive Shrewsbury, MA 01545

Contact:

Cathy Flanagan
508.735.2059
Catmandu117@aol.com

LBDA Affiliate: No

Metro Boston LBD Caregiver Support Group

When: Second Thursday of every month, 6:00 p.m. – 7:30 p.m. (Please call to confirm the date and time.)

Who: For caregivers and family members of people diagnosed with Lewy body dementia.

Location: Board Room at Sherrill House

Address: 135 South Huntington Avenue Jamaica Plain, MA 02130

Contact:

Victoria Ruff
617.710.0136
octoryrose@yahoo.com

LBDA Affiliate: Yes

Norfolk County LBD Caregivers Support Group

When: First Monday of every month, 6:30 p.m. - 8 p.m.

Who: For caregivers and family members of people diagnosed with Lewy body dementia.

Location: Contact Kristin Orr for the meeting location.

Address: Contact Kristin Orr for the meeting location. Contact Kristin Orr for the meeting location., MA 99999

Contact:

Kristin Orr
617.650.0717
southshoreLBD@gmail.com

LBDA Affiliate: No

North Shore Atypical Parkinson’s Support Group

When: Meets quarterly, 1:00 p.m. – 3:00 p.m. Contact Ann Aversa for dates.

Who: People and families dealing with LBD, PSP, CBD, MSA and other similar neurological disease.

Location: Lahey Clinic Medical Center (Contact Ann Aversa for information about the meeting room location at the Lahey Clinic.)

Address: 41 Mall Road Burlington, MA 01705

Contact:

Ann Aversa
617.872.8356
bappsg@comcast.net

LBDA Affiliate: Yes

South Shore Atypical Parkinson’s Support Group

When: Meets every other month (September, November, January, March, June), 2:30 p.m. – 4:00 p.m. Contact Allyson for exact dates.

Who: People and families dealing with LBD, PSP, CBD, MSA and other similar neurological disease.

Location: Braintree Rehabilitation Hospital

Address: 250 Pond Street, 2nd Floor Conference Room Braintree, MA 02184

Contact:

Allyson Gormley LICSW
617.638.7747
allyson.gormley@bmc.org

LBDA Affiliate: No

Baltimore County LBD Caregiver Support Group

When: Contact Kathleen Hadaway for details.

Who: Caregivers and family members of those diagnosed with Lewy body dementia.

Location: Morningside House of Satyr Hill

Address: 8800 Old Harford Road Parkville, MD 21234

Contact:

Kathleen Hadaway
443.802.0734
kathycake@verizon.net

LBDA Affiliate: No

Portland Area Atypical-Parkinson’s Support Group

When: Meets quarterly. Contact Janet Edmunson for dates and times.

Who: People and families dealing with LBD, PSP, CBD, MSA and other similar neurological disease.

Location: Parkinson's Information & Referral Center At Maine Health Learning Resource Center

Address: 5 Buckman Road, Suite 1A Falmouth, ME 04105

Contact:

Janet Edmunson
207.799.4963
janet@janetedmunson.com
Barby Johnson
207.633.0881
rockyledges@yahoo.com

LBDA Affiliate: Yes

Ann Arbor Area Lewy Body Dementia Support Group

When: 2nd Tuesday of each month 2:00-3:30PM (afternoon meeting) and 6:00PM-7:30PM (evening meeting)

Who: Caregivers and family members of those diagnosed with Lewy body dementia.

Location: Huron Woods/ Senior Health Building (on the campus of St Joseph's Hospital)

Address: 5361 McCauley Drive Ann Arbor, MI 48106

Contact:

Tamera Real
734-717-5955
tamara.getreal@gmail.com

LBDA Affiliate: Yes

South Shore Parkinson-Plus Support Group

When: Second Wednesday of every other month (September, November, January, March, June) 2:30 p.m. – 4:00 p.m.

Who: Caregivers, family members and friends of those diagnosed with Lewy body dementia.

Location: Waltonwood at Cherry Hill (an assisted living and dementia care facility)

Address: 42600 Cherry Hill Road Canton, MI 48188

Contact:

Audra Frye
248.943.0556
5642MKTG@hcr-manorcare.com

LBDA Affiliate: Yes