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Local LBD Support Groups

Seeking support? Connect with individuals, families and caregivers who are seeking support during life's challenging times. With support groups in over 30 states and internationally in Canada, connecting with other caregiver provides valuable and trusted resources and information for LBD families. We provide free, confidential support in a group setting to anyone affected by LBD—whether you are an LBD caregiver or are a loved one, friend, or professional caregiver of  someone diagnosed. 

If you are a loved one caring for a loved one and there is no local support group in your area or you can’t get to a support group meeting due to your caregiver responsibilities, please connect in our virtual support groups.

Men’s-Only Lewy Body Dementia and Related Dementias Virtual Support Group

To find a support group in your local area, select your state's two letter abbreviation from the drop down menu and click apply.  (If no groups are listed, consider launching one in your community.  Click here to become a volunteer.)

Local LBD Support Groups

Metro Boston LBD Caregiver Support Group

When: Second Thursday of every month, 6:00 p.m. – 7:30 p.m. (Please call to confirm the date and time.)

Who: For caregivers and family members of people diagnosed with Lewy body dementia.

Location: Board Room at Sherrill House

Address: 135 South Huntington Avenue Jamaica Plain, MA 02130

Contact:

Victoria Ruff
617.710.0136
octoryrose@yahoo.com

Category:

General: facilitated by a caregiver/peer
Norfolk County LBD Caregivers Support Group

When: First Monday of every month, 6:30 p.m. - 8 p.m.

Who: For caregivers and family members of people diagnosed with Lewy body dementia.

Location: Contact Kristin Orr for the meeting location.

Address: Contact Kristin Orr for the meeting location. Contact Kristin Orr for the meeting location., MA 99999

Contact:

Kristin Orr
617.650.0717
southshoreLBD@gmail.com

Category:

General: facilitated by a caregiver/peer
North Shore Atypical Parkinson’s Support Group

When: Meets quarterly, 1:00 p.m. – 3:00 p.m. Contact Ann Aversa for dates.

Who: People and families dealing with LBD, PSP, CBD, MSA and other similar neurological disease.

Location: Lahey Clinic Medical Center (Contact Ann Aversa for information about the meeting room location at the Lahey Clinic.)

Address: 41 Mall Road Burlington, MA 01705

Contact:

Ann Aversa
617.872.8356
bappsg@comcast.net

Category:

General: facilitated by a caregiver/peer
Baltimore County LBD Caregiver Support Group

When: Contact Kathleen Hadaway for details.

Who: Caregivers and family members of those diagnosed with Lewy body dementia.

Location: Morningside House of Satyr Hill

Address: 8800 Old Harford Road Parkville, MD 21234

Contact:

Kathleen Hadaway
443.802.0734
kathycake@verizon.net

Category:

General: facilitated by a caregiver/peer
Portland Area Atypical-Parkinson’s Support Group

When: Meets quarterly. Contact Janet Edmunson for dates and times.

Who: People and families dealing with LBD, PSP, CBD, MSA and other similar neurological disease.

Location: Parkinson's Information & Referral Center At Maine Health Learning Resource Center

Address: 5 Buckman Road, Suite 1A Falmouth, ME 04105

Contact:

Janet Edmunson
207.799.4963
janet@janetedmunson.com
Barby Johnson
207.633.0881
rockyledges@yahoo.com

Category:

General: facilitated by a caregiver/peer
Ann Arbor Area Lewy Body Dementia Support Group

When: 2nd Tuesday of each month 2:00-3:30PM (afternoon meeting) and 6:00PM-7:30PM (evening meeting)

Who: Caregivers and family members of those diagnosed with Lewy body dementia.

Location: Huron Woods/ Senior Health Building (on the campus of St Joseph's Hospital)

Address: 5361 McCauley Drive Ann Arbor, MI 48106

Contact:

Tamera Real
734-717-5955
tamara.getreal@gmail.com

Category:

General: facilitated by a caregiver/peer
Metro Detroit-Lewy Body Dementia Support Group

When: First Monday of the month 6:00-8:00PM

Who: Caregivers, Loved ones and professionals caregivers of those diagnosed with Lewy Body Dementia

Location: Beaumont Outpatient Sterling Heights Building Classroom A&B (by Pizza Café)

Address: 44250 Dequindre Road Sterling Heights, MI 48314

Contact:

Robert Doheny
586-703-5221

Category:

General: facilitated by a caregiver/peer
Minnesota East Metro LBD Caregiver Support Group

When: Third Monday of every month, usually at 6:30 p.m.

Who: Caregivers and family members of those facing a diagnosis of Lewy Body Dementia. We provide a comfortable and compassionate place to share experiences, support, and resources as we journey with our loved one through the many phases of this disease.

Location: Lakeview Commons of Maplewood

Address: 1200 Lakewood Dr. N. Maplewood, MN 55119

Contact:

Directions and General Information
651-773-7150
Paula Biever
651-641-0130
paula.biever@gmail.com
Erik Biever
651-641-0130
ebiever@gmail.com

Category:

General: facilitated by a caregiver/peer
Princeton Area Caregivers Support Group

When: First Tuesday of every month, 1:00 p.m. - 2:30 p.m.

Who: For caregivers and family members of those diagnosed with Lewy Body Dementia, Alzheimer’s Disease, Parkinson’s Disease, and other dementias or neuro-degenerative diseases. The support group also welcomes caregivers who have lost someone to these diseases, and who would like to share their experiences with support group members or who would like ongoing support for themselves.

Location: Elim Care and Rehab Center

Address: 701 1st Street Princeton, MN 55371

Contact:

Carolyn Stabene
763.631.0212
cstabene@yahoo.com
Phyllis Sueverkruepp
763.389.3251

Category:

General: facilitated by a caregiver/peer
Southwest Metro Minneapolis Caregiver Support Group

When: Second Monday of every month, 12:00 p.m. – 2:00 p.m.

Who: For families facing a diagnosis of LBD and health care professionals working with persons with LBD who want information and support.

Location: Gianna Homes

Address: 4605 Fairhills Road East Minnetonka, MN 55345

Contact:

Anne Marie Hansen
952.988.0953
anne@giannahomes.org

Category:

Professional: facilitated by a professional at an advocacy organization, long-term care facility, or other group