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Local LBD Support Groups

Seeking support? Connect with individuals, families and caregivers who are seeking support during life's challenging times. With support groups in over 30 states and internationally in Canada, connecting with other caregiver provides valuable and trusted resources and information for LBD families. We provide free, confidential support in a group setting to anyone affected by LBD—whether you are an LBD caregiver or are a loved one, friend, or professional caregiver of  someone diagnosed. 

If you are a loved one caring for a loved one and there is no local support group in your area or you can’t get to a support group meeting due to your caregiver responsibilities, please connect in our virtual support groups.

LBDA Virtual Support Groups

To find a support group in your local area, select your state's two letter abbreviation from the drop down menu and click apply.  (If no groups are listed, consider launching one in your community.  Click here to become a volunteer.)

Local LBD Support Groups

East Metro Atlanta Lewy Body Dementia Support Group

When: Second Tuesday of every month, 10:00 a.m. – 12:00 p.m.

Who: For caregivers and family members of those diagnosed with Lewy body dementia.

Location: Merryvale Assisted Living Facility

Address: 11980 Highway 142 Oxford, GA 30054

Contact:

Kathy Fowler
678.625.1899
kerf.lbda@gmail.com

Category:

General: facilitated by a caregiver/peer
Late Stage Dementia Class: Things A Caregiver Needs to Know about Late Stage Alzheimer’s Disease, LBD and Frontotemporal Dementia

When: Fridays for 4 weeks, 10:30 a.m. – noon. Held twice a year in January and again in May-June.

Who: Class is designed to prepare caregivers for the late and terminal stage of Alzheimer’s disease, LBD, frontotemporal dementia and other neurodegenerative diseases. Topics to be covered include late stage physical symptoms of neurodegenerative diseases, ethical dilemma’s that may occur and services available during the late stage, such as Hospice.

Location: Emory Alzheimer’s Disease Research Center

Address: 1841 Clifton Road Atlanta, GA 30329

Contact:

Susan Peterson-Hazan, MSW, LCSW
404.728.6273
speter2@emory.edu

Category:

Educational: facilitated by a professional; educational classes are provided
North Atlanta Dementia Support Group

When: Tuesday, December 17 @ 6:30 pm

Who: Caregivers and loved ones of those diagnosed with any type of dementia

Location: Kadan Homecare

Address: 1848 Independence Square Dunwoody, GA

Contact:

Pam Van Ahn
404.606.2378
pam@cth.me

Category:

General: facilitated by a caregiver/peer
IA/IL Quad Cities Lewy Body Dementia Support Group

When: Third Tuesday of every month, 7:00 p.m. - 8:30 p.m.

Who: Caregivers and family members of those diagnosed with Lewy Body Dementia. Professionals working with LBD are also welcome.

Location: Trinity Hospital (in basement room A&B)

Address: 4500 Utica Ridge Road Bettendorf, IA 52722

Contact:

Elizabeth Saelens
1.877.923.3890
info@ehspencerfoundation.org

Category:

General: facilitated by a caregiver/peer
Quad Cities LBD Caregivers Group

When: 2nd Thursday of each month at 7:00 p.m.

Who: Caregivers, friends and family of those diagnosed with Lewy body dementia

Location: Illini Larson Center

Address: 855 Illini Drive, Classroom A, Lower Level Silvis, IL 61282

Contact:

Paul Smith
563-340-2137
qclbdcaregivers@yahoo.com

Category:

General: facilitated by a caregiver/peer
Fort Wayne Lewy Body Dementia Support Group

When: Group is in formation now. Contact facilitator for meeting details

Who: For both caregivers and those diagnosed with LBD.

Location: Turnstone Center

Address: 3320 North Clinton Street Fort Wayne, IN 46805

Contact:

Sarah Miller
260.580.6808
sarahmillerfbs@gmail.com

Category:

General: facilitated by a caregiver/peer
Kentuckiana Lewy Body and Related Dementias Support Group

When: First Wednesday of every month, 11:00 a.m. – 12:00 p.m.

Who: Dementia caregivers, including Lewy body dementia caregivers.

Location: Arden Courts of Louisville (in the activities room)

Address: 10451 Linn Station Road Louisville, KY 40223

Contact:

Angela Youngman
502.387.3898
angela.youngman@gmail.com

Category:

General: facilitated by a caregiver/peer
Lewy Body Dementia Support Group of the Bluegrass

When: First Tuesday of each month from 6:00 p.m. - 8:00 p.m.

Who: Caregivers and loved ones of those diagnosed with Lewy body dementia

Location: Christ Church

Address: 3801 Harrodsburg Road Lexington, KY 40513

Contact:

Daniel McIlwain
859-948-1660
lbdbluegrassky@gmail.com
Sue Dawson
928-853-8383
lbdbluegrassky@gmail.com

Category:

General: facilitated by a caregiver/peer
Northwest Louisiana Lewy Body Dementia Caregiver’s Support Group

When: Fourth Tuesday of every month, 2 p.m. – 3:30 p.m.

Who: Family and friends of people with LBD.

Location: Hospice of Shreveport/Bossier

Address: 3829 Gilbert Drive Shreveport, LA 71104

Contact:

Grace Holcombe
800.824.4672
gragra02@att.net

Category:

General: facilitated by a caregiver/peer
Central Massachusetts LBD Caregivers Support Group

When: First Wednesday of every month, 6:30 p.m. – 8:00 p.m.

Who: Caregivers and families of people diagnosed with Lewy body dementia.

Location: Southgate at Shrewsbury

Address: 30 Julio Drive Shrewsbury, MA 01545

Contact:

Cathy Flanagan
508.735.2059
Catmandu117@aol.com

Category:

General: facilitated by a caregiver/peer