-A +A

Local LBD Support Groups

Seeking support? Connect with individuals, families and caregivers who are seeking support during life's challenging times. With support groups in over 30 states and internationally in Canada, connecting with other caregiver provides valuable and trusted resources and information for LBD families. We provide free, confidential support in a group setting to anyone affected by LBD—whether you are an LBD caregiver or are a loved one, friend, or professional caregiver of  someone diagnosed. 

If you are a loved one caring for a loved one and there is no local support group in your area or you can’t get to a support group meeting due to your caregiver responsibilities, please connect in our virtual support groups.

LBDA Virtual Support Groups

To find a support group in your local area, select your state's two letter abbreviation from the drop down menu and click apply.  (If no groups are listed, consider launching one in your community.  Click here to become a volunteer.)

Local LBD Support Groups

Palm Harbor Area LBD Support Group

When: 1st and 3rd Tuesday of each month at 9am

Who: Caregivers and loved ones of those diagnosed with Lewy body dementia

Location: St. Mark Village

Address: 2655 Nebraska Ave. Palm Harbor, FL 34684

Contact:

Karen Truman
727.391.9999 Monday-Thursday 9am-4pm
drkaren@bookofhope.us

Category:

Professional: facilitated by a professional at an advocacy organization, long-term care facility, or other group
Pinellas County/Largo (daytime) Dementia Caregiver Support Group

When: First and third Friday of every month, 9:30 a.m. – 11 a.m.

Who: Dementia caregivers, including Lewy body dementia caregivers.

Location: Grand Villa Assisted Living

Address: 750 Starkey Road Largo, FL 33771

Contact:

Karen (Karle) Truman, Ph.D.
727.391.9999 on Mondays – Thursdays, 9 a.m. – 4 p.m.

drkaren@bookofhope.us

Category:

Professional: facilitated by a professional at an advocacy organization, long-term care facility, or other group
Pinellas County/Largo (evening) Dementia Caregiver Support Group

When: First and third Tuesday of every month, 6 p.m. – 7:30 p.m.

Who: Dementia caregivers, including Lewy body dementia caregivers.

Location: Grand Villa Assisted Living

Address: 750 Starkey Road Largo, FL 33771

Contact:

Karen (Karle) Truman, Ph.D.
727.391.9999 on Mondays - Thursdays, 9 a.m.- 4 p.m.
drkaren@bookofhope.us

Category:

Professional: facilitated by a professional at an advocacy organization, long-term care facility, or other group
Tampa Bay LBD Caregiver Support Group

When: Second Monday of every month from 3:00 pm to 4:00 pm

Who: Caregivers and family members of those diagnosed with Lewy body dementia.

Location: USF Health Byrd Alzheimer’s Center

Address: 4001 E. Fletcher Avenue Tampa, FL 33613

Contact:

Nancy Teten, LCSW
(813) 974-4355
Betsy McDargh, Family Facilitator
813-486-1256
tampabaylewybodycaregivers@gmail.com

Category:

General: facilitated by a caregiver/peer
The St. Petersburg Area LBD Support Group

When: 1st Wedneday of the month at 6PM

Who: Caregivers and loved ones of those diagnosed with Lewy body dementia.

Location: Bon Secours Place

Address: 10401 Roosevelt Blvd. St. Petersburg, FL 33716

Contact:

Karen Truman
727.391.9999 Monday-Thursday 9am-4pm
drkaren@bookofhope.us

Category:

Professional: facilitated by a professional at an advocacy organization, long-term care facility, or other group
Atlanta Early Memory Loss Group/Class

When: Fridays for 8 weeks, 10:30 a.m. - noon. Held twice a year in September-October and again in February-March.

Who: Open to people with mild cognitive impairment, early Alzheimer’s disease, early LBD and early frontotemporal dementia. Couples are invited to participate where one person has been diagnosed with mild memory and cognitive changes. The group is divided so that the member of the couple who is experiencing memory or cognitive changes meets in one group and their spouse/care partner meets in another group. Single individuals experiencing early memory loss are also invited to participate in this group. They may come alone but are encouraged to bring a friend and/or family member to participate in the care partners group. Topics include: common changes in people faced with cognitive changes, role changes, memory aides, planning for the future and stress reduction.

Location: Emory Alzheimer’s Disease Research Center

Address: 1841 Clifton Road Atlanta, GA 30329

Contact:

Susan Peterson-Hazan, MSW, LCSW
404.728.6273
speter2@emory.edu

Category:

General: facilitated by a caregiver/peer
Caregiver Challenges Class: Everything A Caregiver Needs to Know about the Middle Stage of Dementia

When: Fridays for 6 weeks, 10:30 a.m. – noon. Held twice a year in November-December and again in April-May.

Who: Class is designed to prepare caregivers for the middle stage of Alzheimer’s disease, LBD, frontotemporal dementia and other neurodegenerative diseases. These progressive neurodegenerative diseases require families to plan for the future. Proactive planning can help ensure a high quality of life for the person with the illness as well as their family. Topics include: middle stage disease symptoms, behavior changes and strategies to cope with the changes, treatment options, legal planning issues, and resources to meet evolving needs.

Location: Emory Alzheimer’s Disease Research Center

Address: 1841 Clifton Road Atlanta, GA 30329

Contact:

Susan Peterson-Hazan, MSW, LCSW
404.728.6273
speter2@emory.edu

Category:

Educational: facilitated by a professional; educational classes are provided
East Metro Atlanta Lewy Body Dementia Support Group

When: Second Tuesday of every month 10:00 a.m. – 12:00 p.m.

Who: For caregivers and family members of those diagnosed with Lewy body dementia.

Location: Merryvale Assisted Living Facility

Address: 11980 Highway 142 Oxford, GA 30054

Contact:

Kathy Fowler
404-626-4437
kerf.lbda@gmail.com

Category:

General: facilitated by a caregiver/peer
Late Stage Dementia Class: Things A Caregiver Needs to Know about Late Stage Alzheimer’s Disease, LBD and Frontotemporal Dementia

When: Fridays for 4 weeks, 10:30 a.m. – noon. Held twice a year in January and again in May-June.

Who: Class is designed to prepare caregivers for the late and terminal stage of Alzheimer’s disease, LBD, frontotemporal dementia and other neurodegenerative diseases. Topics to be covered include late stage physical symptoms of neurodegenerative diseases, ethical dilemma’s that may occur and services available during the late stage, such as Hospice.

Location: Emory Alzheimer’s Disease Research Center

Address: 1841 Clifton Road Atlanta, GA 30329

Contact:

Susan Peterson-Hazan, MSW, LCSW
404.728.6273
speter2@emory.edu

Category:

Educational: facilitated by a professional; educational classes are provided
North Atlanta Dementia Support Group

When: Tuesday, December 17 @ 6:30 pm

Who: Caregivers and loved ones of those diagnosed with any type of dementia

Location: Kadan Homecare

Address: 1848 Independence Square Dunwoody, GA

Contact:

Pam Van Ahn
404.606.2378
pam@cth.me

Category:

General: facilitated by a caregiver/peer