LBDA Milestones

The Lewy Body Dementia Association was founded in 2003 to promote research into conquering the disease while assisting those who are affected by it today. Read below to learn of our progress toward these goals.

2015 2014 2013 2012 20112010 2009 2008 2007 2006 2005 2004 2003


  • Collaborated with Mayo Clinic on the 2015 International DLB Conference.

  • Launched 2nd year-long Lewy Who national public awareness campaign.

  • Developed LBD education program for national distribution in collaboration with Senior Helpers.


  • Launched 1st year-long Lewy Who campaign to raise public awareness of LBD.


  • Successfully advocated on behalf of LBD families to influence the research strategy on LBD developed by the National Institutes of Health, as it pertained to the urgent need for clinical trials.

  • Collaborated with National Institute on Aging on the first LBD educational publication by the National Institutes of Health.

  • Reached national audiences via digital distribution of public service announcement on LBD by Whoopi Goldberg.


  • Raised awareness of LBD via national distribution of public service announcement by Kelsey Grammer.

  • Second year of research awards issued in collaboration with Alzheimer's Drug Discovery Foundation.


  • Launched LBDA’s annual series of educational webinars.


  • Launched first nationwide LBD awareness movement.

  • Hosted scientific conference LBD Biomarker Symposium in collaboration with National Institute on Neurological Disorders and Stroke.

  • Successfully advocated to have LBD added to the list of Compassionate Allowances for Social Security disability benefits.


  • National campaign launched to inform neurologists about LBD.

  • First research award issued in collaboration with Alzheimer's Drug Discovery Foundation launched.


  • Launched national network of support groups.

  • National distribution of LBD educational literature to all Area Agencies on Aging.

  • Published first white paper on LBD research and clinical care.


  • Surveyed nearly 1,000 LBD caregivers on their experience with clinical care and subjective burden.


  • Provided testimony to FDA advisory panel on LBD treatment needs.


  • First major grant received, leading to the establishment of LBDA’s office and first staff hiring.


  • First LBD educational and caregiver support resources launched.

  • Scientific Advisory Council created


  • Organization incorporated as a nonprofit in the US.