Two representatives from LBDA joined members of the Parkinson’s disease community from across America in Washington, D.C. at the end of February for the Parkinson’s Action Network (PAN) Forum.
At the PAN Forum, advocates for Parkinson’s disease and related disorders like LBD came together in the nation’s capital to:
- Hear updates on the latest Parkinson’s disease research
- Learn about the federal government's role in Parkinson’s research
- Attend grassroots advocacy workshops to learn how to best educate Congressional representatives on issues important to the Parkinson’s community
- Meet with Congressional members and staff to discuss ways in which the government can support efforts to help advance Parkinson's research and improve patient care
During the Forum, Angela Taylor, Director of Programs, and Davida Washington, Director of Development, worked with a team of advocates from Pennsylvania and Georgia to meet with those states’ senators, representatives, and their staffs. The goal of the meetings was to educate lawmakers about Parkinson’s disease, biomedical research funding and jobs at the state level, and why their vote on certain issues matter to people affected by Parkinson’s and related disorders.
“The PAN Forum was an incredible opportunity to join forces with other advocates from across the country and have our voices heard in Washington,” said Taylor, whose father had LBD. “It was exciting to be representing the LBD community in our nation’s capital, and to be striving to make a difference for families affected by LBD and Parkinson’s disease.”