June 2012 Newsletter

Webinar: LBD Awareness Movement with Coleen Greco

Join us for a webinar about the importance of increasing the public's awareness of Lewy body dementia. The webinar is online on Wednesday, June 20th from 12:00 pm to 1:00 pm EDT and features Coleen Greco, a member of LBDA's Board of Directors. Coleen will guide you through the Awareness Movement and how you can get involved with LBDA. She will share her personal story and examples of fundraisers and outreach events organized by volunteers just like you. She will also explore best practices on bringing awareness of LBD in your community. Registration is now closed.

Standing Strong with LBDA this October for LBD Awareness Month

Stand Strong with LBDA this October

Join us for the 2012 LBD Awareness Movement this October! Standing Strong with LBDA means being counted as someone who understands how important it is for Lewy body dementia (LBD) to become a household word. Support LBD families by joining the Awareness Movement to create awareness of LBD in your local community.

Participants will receive materials and toolkits that will help you along the way. Sign up today to Stand Strong with LBDA and receive your FREE LBD Awareness Toolkit and Hubs of Hope Directory. Use the directory to connect with last year's awareness movement participants and explore collaborating together on awareness activities.

Medical Research Funding at Risk from Federal Spending Cuts

As part of our commitment to be the voice of LBD families in the United States, in 2012 LBDA became a member of Research!America, a health research advocacy organization. Their newest report, Sequestration: Health Research at the Breaking Point, illustrates the dire consequences of automatic spending cuts (sequestration) in the federal budget, which could reduce funding for research agencies by approximately $3.6 billion in 2013 alone. Read the report (PDF) to learn more and send a message to Congress about the importance of medical research to the U.S. economy.

Zumba® with Jess Fundraiser Raises LBD Awareness in Boston

Thank you to Victoria Ruff, LBDA Volunteer extraordinaire, and members of the Metro Boston LBD Caregiver Support Group who organized the "Dancing to Defeat Dementia Zumbathon®” Charity Event to benefit LBDA! More than 150 people participated, learned about Lewy Body Dementia and donated more than $3,000 for LBDA.

Catch the action by watching their video!

Could the results of a colonoscopy predict Parkinson’s disease?

New research suggests that Parkinson’s disease might someday be diagnosed years prior to symptom onset by examining the results of a colonoscopy. Find out more about a recent research study on early Parkinson’s disease and flexible sigmoidoscopy at Rush University Medical Center.

Open Label Trial of Armodafinil Shows Promise in DLB

At the American Academy of Neurology’s annual meeting in April, researchers from the Mayo Clinic reported on a small clinical trial which assessed the safety, tolerability and efficacy of armodafinil therapy for excessive sleepiness (hypersomnia) associated with dementia with Lewy bodies (DLB). Click here to learn more.

Meet LBDA’s New Marketing and Communications Manager

Elizabeth PatickElizabeth Patrick joined the LBDA team in May as the new Marketing and Communications Manager. Elizabeth is a nonprofit marketing and communications professional with more than twelve years of experience in museums and nonprofits. “I am excited to join a great group of dedicated individuals and expand my knowledge of LBD and to increase awareness of LBD on a national level,” says Elizabeth.

In addition to her new role at LBDA, she enjoys spending time with her pastry-chef husband and four-year-old daughter, cooking and going to local farmers’ markets. You can reach Elizabeth at or 404.935.6444 ext 101.