LBDA

December 2014 Newsletter

LBD and Robin Williams: Shining a Light on a Little-Known Disease

The announcement last month that Robin Williams’ autopsy showed he had diffuse Lewy body disease started a frenzy of media attention on a disease that few knew about. Read more.

More large-scale trails needed

LBD Researchers Confirm Need for Large-Scale Studies

An international panel of leaders in LBD research met recently to discuss research opportunities and challenges in the field of Lewy body dementias and identified a major obstacle to research. Read more.

Cell with Lewy bodies

Life with Lewy

Life with a Lewy Body man
is the world in slow motion.
The walk, the talk, life in whole
creeps along at a snail's pace.
Not much gets accomplished
except eat, sleep, and care.

Carol Pappas   San Luis Obispo, CA

First Regulatory Approval for DLB Treatment Comes from Japan

While many medications, including Aricept, have been used “off label” to treat symptoms of LBD, Japan approves it for treatment of  DLB – the first in the world, demonstrating significant research progress in clinical and scientific measures needed for DLB clinical trials. Read more.

Support LBD families when you shop Amazon

Support Families with LBD when You Shop on Amazon

When you shop at AmazonSmile, Amazon donates 0.5% of the purchase price to Lewy Body Dementia Association Inc. Bookmark the link http://smile.amazon.com/ch/05-0577683 and support us every time you shop!

Family and Friends Gather in New York to Support LBD

A cocktail reception to benefit LBDA was hosted and held at the New York apartment of Dina Merrill and Ted Hartley. See more.

Bring LBDA to your community in 2015

Bring LBDA to Your Community in 2015

LBDA has several fundraising ideas that are convenient to implement.  Perhaps your schedule will only allow 6 weeks to plan or you prefer to devote a few months for preparation time, our Development office has fundraiser ideas that fit every time frame and budget. Read more.

LBD Frequently Asked Question

A frequently asked question mentioned recently in the LBDA Forum recently was: What is Capgras Syndrome?

You can find the answer to that question in our newsletter archive article entitled, “Capgras Syndrome in DLB Associated with Anxiety and Hallucinations,” To read this article and learn more about the frequency of Capgras Syndrome in LBD,  click here.

'Tis the Season!

Buy flowers from FTD for friends and family and support LBDA.

Volunteer Corner

Read about SMILES for volunteers, nominate a Volunteer of the Year, and Manage Holiday Stress