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April 2013 Newsletter

LBDA Attends American Academy of Neurology (AAN) Conference

LBDA booth at AAN 2013

Representatives of LBDA exhibited at the annual meeting of the American Academy of Neurology last month in San Diego, CA. This is the sixth time that LBDA has participated in this conference, which provides LBDA vital feedback from neurologists about their clinical experiences with Lewy body dementias. Dialogue with meeting attendees suggests a continuing increase in the proportion of neurologists that regularly diagnose and treat LBD patients. Physicians also expressed greater interest in obtaining LBDA materials for their patients and referring them to LBDA for additional resources. Learn more about AAN.

Miss Arkansas Contestant Promotes LBD Awareness

Miss Magnolia 2013 Morgan MillerThis past January, Morgan Miller was crowned Miss Magnolia 2013. She is a senior at Southern Arkansas University in Magnolia, AR, and she will graduate with a Bachelors of Science in Nursing in May. She is going on to compete in the Miss Arkansas Pageant this July. We are honored that Morgan chose her platform to be "A Fight to Remember: Lewy Body Dementia" in honor of her late grandmother Linda Sue Morgan, who passed away last August. Morgan says, “Knowing that Lewy body dementia gets misdiagnosed most of the time, I felt that this would be an amazing way to promote it to wide variety of people."

Lewy Body Pathology – Not the First Problem of Parkinson’s?

Lewy body pathology is found in the brains of 10 to 30 percent of older adults without any parkinsonian motor symptoms and is called incidental Lewy body disease (ILBD). Research suggests that ILBD may represent a ‘preclinical’ stage of Parkinson’s disease (PD) that occurs before symptoms develop. Read more here.

Dad’s Not All There Anymore by Alex Demetris, “Louie What?”

English graphic artist Alex Demetris is sharing part of his 28-page graphic novel Dad’s Not All There Anymore each month for February, March and April. It is based on Alex's family's experience of coping with his father’s LBD. Click the image below to see this month’s panel. If you would like to know more about Dad's Not All There Anymore please contact Alex through his web site at www.cargocollective.com/alexdemetris.

Alex Demetris, Louie What?

© 2012 Alex Demetris, All rights reserved

Early Visual Hallucinations Greatly Increase Odds of LBD Over Alzheimer’s

Visual hallucinations are a core feature of dementia with Lewy bodies, occurring in 32-85 percent of autopsy-confirmed cases. New research reveals the onset of visual hallucinations within five years of developing dementia increases the odds of pathology-confirmed Lewy body disease four to five times over Alzheimer’s disease. Read the whole article.

Five Caregiving Tips for Lewy Body Dementia

LBDA is excited to be a contributor to the National Parkinson Foundation’s Caregiver Blog and to educate new audiences about Lewy body dementia. The first post entitled “Lewy What?” is a general informational piece on LBD, and the most recent post includes practical caregiving tips for LBD. Read the latest blog post.