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 Fecal incontinence 
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Fecal incontinence
I posted this on the Caregiver Spouse forum this morning regarding pads to protect the bed:
I bought some really nice ones at Walmart. They are quilted cotton on one side
and waterproof on the other and are 29" by 33". They go into both washer and
dryer. I don't remember how much they cost but I think it was about $8 each. I
found them in the medical supply area near the pharmacy.

_________________
Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Fri Sep 03, 2010 7:28 pm
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Joined: Sun Oct 21, 2007 4:18 pm
Posts: 835
Location: Acton, MA
Post Re: Fecal incontinence
Pat, My sister gave me several of those pads after her mother-in-law passed away. They are a god sent. I put 2 under the sheet but on top of the mattress cover, saves a lot of laundry. I have recently put on on the couch so if Frank falls asleep there, I just leave him and if he wets the couch isn't ruined. I glad to know where to buy them incase I need more.

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Gerry 67, cared for Frank 71, married 49 yrs; dx 2004, passed away October 26, 2011.


Fri Sep 03, 2010 8:10 pm
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Joined: Sat Jul 31, 2010 5:28 pm
Posts: 317
Post Re: Fecal incontinence
I bought some huge ones from Amazon. I mean, they are about 35 inches wide and about 50 inches long. I put one on the bed over the sheet and if it gets wet, I ususally get it before the sheet gets damp and take it off and replace it with a freshpad. That way I just replace the pad and the sheet stays in place. Takes about 30 seconds. I habe three of them and I may get more. They are so handy.


Fri Sep 03, 2010 8:27 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Fecal incontinence
It doesn't hurt to put one on the car seat, either. ;-)

_________________
Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Fri Sep 03, 2010 9:14 pm
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Joined: Sat Jul 31, 2010 5:28 pm
Posts: 317
Post Re: Fecal incontinence
Good idea. He's already annointed the passenger seat in our new Prius. (Just urine, thank goodness.) It was not one of my finer hours.

Using the Condom Catheter really helps when we go in the car. I don't worry so much anymore. But a pad would give me a little extra peace of mind in case of a 'rear failure."


Fri Sep 03, 2010 10:43 pm
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Joined: Tue Dec 29, 2009 2:28 pm
Posts: 464
Location: Minnesota
Post Re: Fecal incontinence
I should explain the "muddy rivers." Mom has, along with everything LBD brings, collagenous colitis, basically eternal diarrhea. We have it under control most of the time with some extraordinarily medication. But when the meds don't do their job or need to be adjusted, it's the muddy Mississippi.

I've used some of the bed pads with the 30 change (over the sheet). Unfortunately, on two I got online (I think from the Bedwetting Store, but don't quote me) the plastic melted in the dryer, making them useless.

I do buy the larger pads, sometimes they can be found in 36" x 72" because Mom still sleeps in her full bed and moves around a lot. These longer pads, I'm told, are meant to cover the entire length of a twin bed, but I just turn them the other way and the cover the trouble area across the whole bed. I also use a chair pad on "her" chair - a lift chair. I've used them in the car, too, on long trips (more than 2 hours). But the couch - now that's something I've thought of but never done. That I need to try! Actually, there are several chairs, etc., that I need to do this for.

My niece made her Grandma some pads with some sort-of waterproof fabric. They've got some flannel-like surface so feel like a small blanket. They're good for not-too-often used chairs and car seats, but I need to see the plastic for heavily used furniture. She got this fabric from a fabric store she worked in while in college. But she generally knows were to get the fabric she wants.

I remember that, in the 60's and later, Mom made some tablecloths for the outdoor furniture out of decorated plastic backed with felt that she found in the fabric store. I think they still sell some version of it.

Thanks for all of the ideas!

Kate

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Kate [i](Cared for Mom for years before anyone else noticed the symptoms, but the last year of her life was rough and we needed to place her in an SNF, where she passed in February 2012)[/i]


Fri Sep 03, 2010 11:34 pm
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Joined: Sat May 05, 2012 1:25 pm
Posts: 14
Post Re: Fecal incontinence
today i went to see my dad for our daily visit and my dad had dirty shorts. i could tell by the odor that he had had another accident. this has been happening with greater frequency lately, so i casually asked him to change out of his shorts. got him into sweats and did a laundry. he didn't understand what had just happened. he kept saying that didn't understand what was the"stain", so i assured him that whatever it was it would come out in the wash and not to worry. he kept harping on it anyway. i reassured him several times that whatever it was, it would be fine. i felt that i should not overexplain because i did not want to embarrass him in any way. i think he would have become very upset to think that he had passed stool. and then he may have denied it. usually now when he plugs the toilet, he will tell me that someone else has done it, so i have learned not to go there. he kept asking me what it was; by the time i left tonight he seemed to be forgetting about it. he lives in his own house, so his aides will not be in until tomorrow morning, but i have updated them on this. he will see his new neurologist in a few days, so hopefully we will know more about his situation. we have aides who come in and take care of him and this hygiene stuff, but now this is happening more and i am dealing with it with increasing frequency, cleaning the bathroom, doing the sheets, laundry, etc., myself so i am thinking that we will need to increase the hours for his aides. best wishes to all in this forum. your stories comfort me and give me inspiration, reassurance, and
strength. hugs to all of you who are also struggling with lbd in their loved ones. i am so very lucky that my dad is able to afford very loving aides to help us all cope, for the time being anyway. when he was living with me we had some challenges, and his separate space has helped him with his pride and spirit of independence, and it has had the bonus of giving us much more quality time together. hoping things get better, or at least not worse for a while. this disease is such a see-saw. i am thankful for each new day when we can laugh together and enjoy just being. :)

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daughter of father with LBD, age 84
present stage described by neurologist as moderately severe
presently receiving several hours of professional care in home


Thu Jun 27, 2013 11:13 pm
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3436
Location: Vermont
Post Re: Fecal incontinence
It sounds like it is time for him to wear Depends-type underwear. One of the things that can also happen with dementia-type illnesses is ataxia, which makes it impossible for the person to be able to really clean themselves so having aides come in more often will be a big help. LBD seems to get so many signals mixed up in their brains that I can understand how your dad doesn't even know "what made that stain". So many things no longer connect like they do in a healthy brain. It is sad, and it sounds like you are doing all you can to help your dad maintain dignity. If he can afford aides to come into his own home that is fantastic. It certainly isn't cheaper than a facility if/when the time comes that he needs 24/7 care but if he can stay home a while longer I'm sure he's happier there. Best, Lynn

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Fri Jun 28, 2013 7:21 pm
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Joined: Sat May 05, 2012 1:25 pm
Posts: 14
Post Re: Fecal incontinence
Wow, Nan, impaction is such a difficult situation. My Dad had impaction also. i was out of town when it happened to my Dad this May. But my daughters took him to the hospital. The ordeal lasted several hours. They saw the worst of it, not me. It was pretty tough but they handled it.
As you said, very tough. And I didn't have to deal with it, but my dear daughters did, and they took good care of their of their grandfather in my absence. Lucky for me and my Dad, the family can fill in.

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daughter of father with LBD, age 84
present stage described by neurologist as moderately severe
presently receiving several hours of professional care in home


Wed Jul 03, 2013 2:19 am
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Joined: Sat May 05, 2012 1:25 pm
Posts: 14
Post Re: Fecal incontinence
Yes, Lynn, I know you are right. Luckily we do have the aides. I am
hoping that we can keep him in his home for as long as possible. We do have adult diapers that we were using following my dad's bladder surgery. So we do have them. He just got the diagnosis from his neurologist on Monday: moderately severe dementia...not sure what is down the road for us, but his dr. is from Mass General in Boston, so i think he knows his stuff. But I am just not clear on staging, and LBD can be so confounding. Six months we go back to MGH. Working on this.

_________________
daughter of father with LBD, age 84
present stage described by neurologist as moderately severe
presently receiving several hours of professional care in home


Wed Jul 03, 2013 2:36 am
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3436
Location: Vermont
Post Re: Fecal incontinence
"moderately severe" - now that's a confounding concept to try to wrap your head around! Hang in there, it's a tough road. Big hug, Lynn

_________________
Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Wed Jul 03, 2013 8:33 am
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: Fecal incontinence
Yep, it is a very tough road but glad ytou have family to step in when needed, I will tell you the one most helpful thing I found was keeping everything routine as much as possible! Good Luck !

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Irene Selak


Sun Jul 07, 2013 11:23 am
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