Just called the hospital and talked to my husband's nurse. He is doing fine today and is accepting all care. However, they assumed that he could not get up on his feet and have been keeping him in bed. Sigh! Doesn't any nurse know how to call the caregiver and ask what an LBD patient's baseline is? Obviously not!!

My husband also knows why he's in the hospital...that he hit his wife and the police came and took him to the hospital. Well, actually the ambulance took him to the hospital. The police showed up to make sure my husband didn't take a swing at the paramedics.

I told the nurse to let my husband know that I love him and that I'll be by tomorrow afternoon to see him.

Glad to hear he is doing better, Beth!

So sorry for what you are going through now Beth. Take care of yourself. Lynn

Thanks Lynn. I'm still in a quandry about whether or not to allow the psychiatrist to prescribe Tegretol for my husband.

Robin, could you please research Tegretol and let me know what you think about it. Irene, I would appreciate your feedback on this drug, also. And from anyone else who wants to weigh in on this subject.

I don't mind my husband getting started on Seroquel, but I'm not feeling warm and fuzzy about Tegretol, especially because he has Afib and has had a silent stroke in the right basal ganglia area.

Carol and Beth, this too has been a fear of mine. I've posted before about a couple incidents we had here but none since I quit the topical anti-fungal, weird huh. My concern was as yours, what to do after hours or in the middle of the night when friends/family are sleeping soundly. I live in the High Desert in SoCal. No real neurological specialties in the area. Through UCLA, they have an "Alzheimer's and other Dementia" support center. The doctor at UCLA had recommended it last June but it's 93 miles from my house so I didn't think it was feasible. When John had his nighttime episodes, the doctor again suggested perhaps it was time to try it so I asked her to refer us there. We went Thursday, Nov 8. That has been the best move I've made so far. We completed a questionnaire in advance, then went for our face-to-face. We met a nurse practitioner very knowledgeable in LBD. Went through the interview which consisted of questions and observations of him and me, together and separately. (I was told in the beginning that he didn't really even have to go as the support is more for the caregiver. He's ambulatory so I took him.) She went over the condition with John, explaining that everyone is different but enumerated those things that he may experience in the future. Talked about my safety and mentioned the importance of being prepared with known resources should we ever need them. Better than being caught unawares. It was so much better than me trying to educate him. She will now be our go-to person. John goes back in a year but I can go back anytime. What this does for us is whenever something happens, 24/7, I have contacts via phone. During regular hours, she will get the call. After hours the call will be answered by a Geriatrician. Whatever is happening or whatever I need anytime day or night will be handled by them. The nurse practitioner is researching availablility of needed resources in my area, e.g. a Geriatric Psychiatrist. She will be the conduit between us and our doctors. She has the information about our local doctors and will start a dialogue with them. I pray it's all what it's advertised to be. This is a relatively new program and it's growing. I'm not sure how they would respond to interested parties from long distances away, but if you were interested in something like that, perhaps a call to them will guide you to a similar program near you. Like I said, he doesn't have to go back for a year. Most of the contact will be by phone or e-mail. If you or anyone would like the contact information, e-mail me and I'll be glad to provide what I have.

Blessings to you all.

Wow, what a great program!