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 Sleep Aids 
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Joined: Thu May 31, 2012 6:51 pm
Posts: 60
Post Sleep Aids
Can anyone give me advice on which sleeping medication is best for someone with LBD? I am currently giving my husband 3 mg of Melatonin every night and it is helping him to get to sleep, but I know he isn't sleeping all night. I prefer that he be on something that is non-addictive.

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Beth


Thu Jun 21, 2012 11:46 pm
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Sleep Aids
Dr. Brad Boeve's "Continuum" paper (do a search on lbda.org) is my go-to source for questions on the treatment of specific symptoms. I think Dr. Boeve likes melatonin. Trazadone might also be one of his preferred meds for sleep.


Fri Jun 22, 2012 1:16 am
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Sleep Aids
And have you reviewed a list of non-medication approaches to sleep? I'm sure there's a list posted here of good sleep hygiene -- exercise during the day, relaxing an hour or so before bed, no caffeine after a certain time, warm bath, etc.


Fri Jun 22, 2012 1:18 am
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Joined: Sun Jun 24, 2007 5:35 pm
Posts: 343
Post Re: Sleep Aids
Beth, there is now a slow release form of melatonin. My husband takes it and it does work better throughout the night. I found it at WalMart and health food stores.

Also, with his doctor monitoring it, you can increase melatonin dosage significantly without harm for many patients. John is on 10mg slow release melatonin and has been now for years. It took care of most of his REM symptoms and restored his sleep quality pretty well.

Take care,
Pat

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Pat Snyder, husband John, dx LBD 2007
Author of [i]Treasures in the Darkness: Extending Early Stage of LBD...[i][/i] [url]http://www.amazon.com/Treasures-Darkness-Extending-Alzheimers-Parkinsons/dp/1466428228/ref=sr_1_1?ie=UTF8&qid=1334092686&sr=8-1[/url]


Sat Jun 23, 2012 5:26 pm
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Joined: Thu May 31, 2012 6:51 pm
Posts: 60
Post Re: Sleep Aids
Hi Everyone:

My husband's neurologist recently put him on Trazodone to help him sleep. From my research, I see that this antidepressant is non-addictive.

Has anyone else heard of this drug?

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Beth


Wed Jul 11, 2012 12:37 am
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Sleep Aids
Yes, my husband was put on it for a while but it did not help him sleep.

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Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Wed Jul 11, 2012 12:44 am
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: Sleep Aids
We also used Trazadone, we had no problems with it! Everyone is different when it comes to the meds these type of decisons are best when left to the doctors !

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Irene Selak


Wed Jul 11, 2012 7:27 am
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Joined: Sun Jun 24, 2007 5:35 pm
Posts: 343
Post Re: Sleep Aids
I agree, Irene, as long as it a decision being made by the right doctor who really does understand LBD. I have friends whose doctors have really messed up their loved ones by bad medical decisions based on ignorance about LBD. The very best doctors are smart and secure enough to become team members with the caregiver in this disease, in my opinion.

Medicine is just like every other profession---some are much better than others.
Pat

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Pat Snyder, husband John, dx LBD 2007
Author of [i]Treasures in the Darkness: Extending Early Stage of LBD...[i][/i] [url]http://www.amazon.com/Treasures-Darkness-Extending-Alzheimers-Parkinsons/dp/1466428228/ref=sr_1_1?ie=UTF8&qid=1334092686&sr=8-1[/url]


Wed Jul 11, 2012 7:26 pm
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: Sleep Aids
It is really important to have a team of doctors that are willing to partner up with you, while advocating for our LO's. Not everyone is lucky enough to have that where the doctor really knows LBD!

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Irene Selak


Wed Jul 11, 2012 10:28 pm
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