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 Introduction 
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Joined: Mon Oct 31, 2011 10:44 am
Posts: 20
Post Introduction
Hi everyone - I have posted a few questions in the forum but have not formally introduced myself or my mom. Mom was diagnosed at Mayo Clinic in MN in October with LBD. I had taken her there because she had declined rapidly in a couple of months - she went from being able to live by herself in her own home to no longer being able to care for herself.

I moved her into assisted living in her home town in the Upper Peninsula of MI in early Dec - I had been there taking care of her since October until a place opened up. She didn't like it there but was doing fine - socializing, eating, doing PT and OT - she had 1 hour of care a day which was for the shower and getting dressed in the am.

Late Jan she started to become paranoid - she could hear my voice in the hallway at the assisted living place - and I was always with a "bad man". This got progressively worse over a couple of days until 3 weeks ago on a Friday she started hitting her head against a wall and being angry and combative. The assisted living place called me and I had her in-town caretaker go over (I live in Boston) to see if she could calm her down, but she couldn't. I had the assisted living place call 911 and they brought her into the ER and then admitted her to the hospital. My husband and I were lucky to get a flight that evening and arrived in Michigan about midnight. I stayed with her that night, and although she was highly paranoid, she was still "there" cognitively.

The town she lives in is a very small town with a county hospital, so they have no psych unit and no geriatric speciality. It took about a week but she calmed down (mostly because she was overly medicated) on 100 mg Serequal spread over a day (for the paranoia) and .25mg Xanax 4 times a day (for the high agitation). Last Tuesday she and I flew out to Boston with a hired RN. She is now at Belmont Manor in Belmont, MA.

They started to lower the dose of the xanax last week, and we'll see what happens this coming week. She can now no longer feed herself or walk and is completely incontinent. She is combative (and yelling) with any type of personal care. She does not always acknowledge that I am there and does not understand that she has been moved. She can go from being weepy to angry to scared in a matter of minutes, and then the cycle will start again.

I believe that she understood her diagnosis, and I don't know if that is causing some of these behaviours or if this is just the disease or the medication.

There's so much more but this is a start. Thanks! Lisa

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Lisa, caring for mom Betty, 86. LDB diagnosed Oct 2011. In dementia unit near Boston.


Sun Mar 04, 2012 1:37 pm
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Introduction
Lisa,
So glad to hear that you've got your mother settled into a care facility nearby. I'm sure that's a relief. Good idea to try to reduce the Xanas. Is she still taking Seroquel? Keep us posted....
Robin


Sun Mar 04, 2012 3:07 pm
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Joined: Fri Nov 05, 2010 11:30 pm
Posts: 317
Location: southern cali
Post Re: Introduction
lisa..

welcome.... i'm so sorry!!!

this sounds like it has been a horrible ride for you and your mom recently....my heart goes out to you both.. i'm so glad that she is closer to you now and at least that distance thing, is once less problem... i hope the reductions in meds, are able to help her settle...

big hugs to you both as you go down this lewy path...let us know how things are going....

cindi

_________________
sole CG for hubby.1st symptoms, 2000, at 55. Diag with AD at 62, LB at 64.. vietnam vet..100% ptsd disability,sprayed with agent orange, which doubled chances for dementia. ER visit 1-14,released to memory care..


Sun Mar 04, 2012 4:57 pm
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Joined: Mon Oct 31, 2011 10:44 am
Posts: 20
Post Re: Introduction
Hi all. She is still taking serequel (exactly HOW do you spell that - I need to google that). She had a good day today - we'll see how it goes! More soon and thanks so much for your response and support. I am an only child and my dad has been dead since I was 16 (that's 1977 so you can figure out my age!) so the community you offer is so important to me. Lisa

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Lisa, caring for mom Betty, 86. LDB diagnosed Oct 2011. In dementia unit near Boston.


Sun Mar 04, 2012 10:05 pm
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Introduction
Seroquel (quetiapine)


Sun Mar 04, 2012 11:13 pm
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3113
Location: Vermont
Post Re: Introduction
Lisa - so sorry to hear about your mom's progression, but am glad you were able to move her. That should take some pressure off you in terms of having a huge distance to travel when you need to/want to see her, get her to dr. appts., etc. Good luck. Lynn

_________________
Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Wed Mar 14, 2012 7:35 am
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