View unanswered posts | View active topics It is currently Fri Apr 25, 2014 2:46 am



Reply to topic  [ 10 posts ] 
 Leg & Foot Pains 
Author Message

Joined: Fri Nov 18, 2011 11:56 am
Posts: 14
Location: Mukwonago, WI
Post Leg & Foot Pains
My 84 yr old mother has LBD and is in a wheelchair all the time, only has a little leg movement, can stand up with a 2 person assist and pivot slightly. Recently she is having leg and bottom of the foot pain (extreme pain). Any ideas on what to do for her? We now have her in her recliner numerous times a day to stretch out her leg muscles. He regular dr told us she needs to exercise more, not sure how that is suppose to happen.
Thanks
Sue

_________________
Sue


Sat Nov 19, 2011 9:21 pm
Profile

Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: Leg & Foot Pains
Dear Sue,
Welcome to the LBDA forums, if you don't mind I am going to move your post to the treatment area , that way more people will see it and offer some ideas.

_________________
Irene Selak


Sat Nov 19, 2011 9:47 pm
Profile WWW

Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: Leg & Foot Pains
Again Hello Sue,
One of the things we found very helpful was massage therapy, it really helped with the muscle that would become so tight!

_________________
Irene Selak


Sat Nov 19, 2011 9:53 pm
Profile WWW

Joined: Sun Jun 24, 2007 5:35 pm
Posts: 343
Post Re: Leg & Foot Pains
Sue, I am sorry your mom is hurting. My husband has found deep therapeutic massage to really help him with foot discomfort. I hope it might help your mom as well. He can always walk better right after a massage, too.

_________________
Pat Snyder, husband John, dx LBD 2007
Author of [i]Treasures in the Darkness: Extending Early Stage of LBD...[i][/i] [url]http://www.amazon.com/Treasures-Darkness-Extending-Alzheimers-Parkinsons/dp/1466428228/ref=sr_1_1?ie=UTF8&qid=1334092686&sr=8-1[/url]


Sat Nov 19, 2011 11:18 pm
Profile

Joined: Fri Dec 31, 2010 3:07 pm
Posts: 1039
Location: Minnesota
Post Re: Leg & Foot Pains
My husband benefits from massage therapy, too. It is definitely worth considering.

Exercising might be very helpful, too. But you need some help to figure out how that could happen. Would her doctor order a few sessions with a physical therapist, to assess the situtation and demonstrate some useful exercises?

_________________
Jeanne, 68 cared for husband Coy, 86. RBD for 30+ years; LDB since 2003, Coy at home, in early stage, until death in 2012


Sat Nov 19, 2011 11:44 pm
Profile

Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Leg & Foot Pains
There are lots of chair-based exercise programs, such as "Sit and Be Fit" (sitandbefit.org). Would your mother be capable of doing those or is she immobile?

If she's immobile, then your only options are massage and "range of motion therapy" (often called "restorative care"). If she's immobile, have you considered hospice?


Sun Nov 20, 2011 1:04 am
Profile

Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3126
Location: Vermont
Post Re: Leg & Foot Pains
My dad got some relief when his CGs put him in a hot whirlpool bath. His legs and feet would be like iron they were so cramped and stiff, and then they could become like wet spaghetti. Strange disease. Towards the end they were very stiff most of the time, so the whirlpool bath was some relief for him. He couldn't stand anyone touching him by then, so massage was out of the question unfortunately.
Has anyone tried a heating pad for this, or a hot herb-wrap? I just bought a lavendar scented neck wrap at a craft fair and it seems to relax my neck muscles when it's nice and warm. Lynn

_________________
Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Sun Nov 20, 2011 8:43 am
Profile

Joined: Tue Mar 29, 2011 3:02 pm
Posts: 386
Location: East TN
Post Re: Leg & Foot Pains
I get a lot of leg cramps…

Sometimes really hard in the calf….

Sometimes whole leg it seems…

Sometimes in the foot….

and then I get these little ones that just seem to go on forever…

and then some in between….

when I was dehydrated alot….I would drink alot of gatorade, and eat potato chips…

I have taken to eating bananas on a daily basis….
I have been using Tonic Water for the last few weeks at the suggestion of Dr. Boeve and some of the Habit participants….?

I have been using a heating pad for a little longer…..sometimes at night just before going to bed…..and then again in the morning before I get up out of bed….this seems to help immediately for the ache pain….

Aricept increased the muscle cramps in frequency and in more locations….so this is a daily battle….but, seems to have settled down with less intense on a daily basis….with just a few 'hard' ones occasionaly….

edit: to add…I like hot soaking baths for aches also….but, have to limit these…as I have hyperhydrosis….I sweat to the point of dehydration in a hot bath….

_________________
Craig - Patient - Male - 56 years old - Lewy Bodies diagnosed on March 23, 2011 - cognitive disorder NOS dx 2007 - RBD REM dx 2007 issues for 20+ years - intention tremor 1974 - other issues many years


Last edited by BayouCajun on Sun Nov 20, 2011 2:17 pm, edited 1 time in total.



Sun Nov 20, 2011 1:57 pm
Profile

Joined: Tue Mar 29, 2011 3:02 pm
Posts: 386
Location: East TN
Post Re: Leg & Foot Pains
Unexplained leg pain….

I have had three episodes over the last 4 years of extreme, unexplained leg and foot pain that came and went without an explanation….

one episode lasted about 3 days….

one episode lasted a few weeks….

my pain was unexplainable….I could not explain it…

I could not call it bone, muscle, skin pain….

maybe all…all pain….

I couldn't turn it to stop hurting, I couldn't take weight off to stop it, or put weight on it….
I couldn't stand for my leg to be touched...

it was just frustrating….pain meds didn't help….

only after I wasn't in pain…..I was tested for nerve problems, sciatic nerve and nerve conduction by MS and Accident Neurologists….nothing found…..

so….all this to say…..I have had some extreme pain that just didn't respond to anything….and didn't come from anywhere….

what do you do for that?

I remember the only relief I got was when I was able to fall asleep.

_________________
Craig - Patient - Male - 56 years old - Lewy Bodies diagnosed on March 23, 2011 - cognitive disorder NOS dx 2007 - RBD REM dx 2007 issues for 20+ years - intention tremor 1974 - other issues many years


Sun Nov 20, 2011 2:14 pm
Profile

Joined: Fri Nov 18, 2011 11:56 am
Posts: 14
Location: Mukwonago, WI
Post Re: Leg & Foot Pains
Thanks for all of the advice,

_________________
Sue


Sat Dec 03, 2011 4:12 pm
Profile
Display posts from previous:  Sort by  
Reply to topic   [ 10 posts ] 

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot post attachments in this forum

Search for:
Jump to:  
Powered by phpBB © 2000, 2002, 2005, 2007 phpBB Group.
Designed by STSoftware for PTF.
Localized by Maël Soucaze © 2010 phpBB.fr