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BayouCajun
Joined: Tue Mar 29, 2011 3:02 pm
Posts: 386
Location: East TN
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 Headed to Mayoâ¦HABIT programâ¦Update day 4â¦. here we go againâ¦. I am so a lucky guyâ¦.and I know itâ¦.must be the delusions...  I am headed to Mayo for a two week program call HABITâ¦..google Habitâ¦Mayoâ¦.. two weeks of learning how to live with MCIâ¦..early stuffâ¦.quality of lifeâ¦.full programâ¦.. patient and caregiverâ¦.. looks like I will have two with meâ¦. bringing my wife and my oldest daughterâ¦..I am a hard caseâ¦..a tough nutâ¦. it starts on the 24 of October and runs for two weeksâ¦. so I will be in Rochester and thereaboutsâ¦.anyone for coffeeâ¦. Jeanneâ¦.I owe you and Coy some real Cajun foodâ¦.so you guys get betterâ¦.. soâ¦.alot to do right nowâ¦.looks like house might foreclose on the 19thâ¦.. manâ¦.life just doesn't give me any breaksâ¦.just like everyone elseâ¦. soâ¦.I am looking at emptying the house into storage before heading up thereâ¦..no rest for the wickedâ¦.. thank God and Mayo for astronaut speedâ¦.I am back on Provigilâ¦.nectar of the Godsâ¦. also upped Aricept to 20mgâ¦. soâ¦.brain and brawnâ¦..drug inducedâ¦. 
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Craig - Patient - Male - 56 years old - Lewy Bodies diagnosed on March 23, 2011 - cognitive disorder NOS dx 2007 - RBD REM dx 2007 issues for 20+ years - intention tremor 1974 - other issues many years
Last edited by BayouCajun on Fri Oct 28, 2011 12:01 am, edited 1 time in total.
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| Thu Oct 06, 2011 3:24 pm |
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mockturtle
Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3018
Location: WA
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Re: Headed to Mayoâ¦HABIT program... Hope the program will be helpful, Craig. Prayers and hugs.
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Pat [67] married to Derek [83] for 37 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011.
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| Thu Oct 06, 2011 4:54 pm |
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robin
Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
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Re: Headed to Mayoâ¦HABIT program... Wonderful that you are plugged in to the Mayo scene!
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| Thu Oct 06, 2011 6:17 pm |
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BayouCajun
Joined: Tue Mar 29, 2011 3:02 pm
Posts: 386
Location: East TN
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Re: Headed to Mayoâ¦HABIT programâ¦UPDATE: we are hereâ¦. Pat, many prayers answered lately, keep em coming⦠Robin, yesâ¦.I am very grateful to hooked up with Mayoâ¦. UPDATE: I arrived today, setup my camper in campgroundâ¦.(Patâ¦as you knowâ¦..only way to travel⦠have my two inflatable kayaks in the truckâ¦too⦠) My oldest daughter came with meâ¦so the two of us are hereâ¦. Ready to get started in the morningâ¦.pumped upâ¦probably won't sleep toniteâ¦.like that is abnormal Two weeks here in Rochesterâ¦.anyone in the area want to meet for coffee and share with my daughterâ¦we would love to meet youâ¦.
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Craig - Patient - Male - 56 years old - Lewy Bodies diagnosed on March 23, 2011 - cognitive disorder NOS dx 2007 - RBD REM dx 2007 issues for 20+ years - intention tremor 1974 - other issues many years
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| Mon Oct 24, 2011 12:59 am |
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BayouCajun
Joined: Tue Mar 29, 2011 3:02 pm
Posts: 386
Location: East TN
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Re: Headed to Mayoâ¦HABIT programâ¦Update day 4â¦. Update:
Day 4â¦.
New Habitsâ¦imagine thatâ¦.
I have hope this is going to help meâ¦big timeâ¦
Yoga?â¦.
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Craig - Patient - Male - 56 years old - Lewy Bodies diagnosed on March 23, 2011 - cognitive disorder NOS dx 2007 - RBD REM dx 2007 issues for 20+ years - intention tremor 1974 - other issues many years
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| Fri Oct 28, 2011 12:03 am |
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cdw
Joined: Fri Nov 05, 2010 11:30 pm
Posts: 302
Location: southern cali
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Re: Headed to Mayoâ¦HABIT programâ¦Update day 4â¦. glad to hear the news craig...
thanks for letting us know how you are doing....
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CG for hubby. started showing symptoms in 2000, at 55, diagnosed at with AD at 62, LB at 64.. vietnam vet.. has ptsd, which doubled the chances for dementia...sprayed with agent orange. showing signs of parkinsons.
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| Fri Oct 28, 2011 3:29 pm |
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BayouCajun
Joined: Tue Mar 29, 2011 3:02 pm
Posts: 386
Location: East TN
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Re: Headed to Mayoâ¦HABIT programâ¦Update back home wowâ¦.
I have a lot to sayâ¦.butâ¦
it will have to waitâ¦.
it is time for a another cup of Chock Full O' Nutsâ¦.(always wanted to try thatâ¦DONE)
I feel like a new personâ¦..
I am going to take my time and put on paper what I really think about the programâ¦
I like the results so farâ¦.I am going to work hard to keep those results for as long as I canâ¦.
I had my daughter's helpâ¦.and will continue toâ¦.this is not a solo programâ¦.
Let me say this much for nowâ¦..I will back this up with more laterâ¦.
If you are a person with Cognitive Disorder NOS (Not Otherwise Specified) or Mild Cognitive Impairment (MCI)â¦â¦or a partner or caregiver or family member or friend or someone who isâ¦..
If that person can still function independentlyâ¦.
This program is a life changerâ¦..or to be more specificâ¦.a life extenderâ¦..
Please take the time to look into itâ¦.if you want that independence to last longer and be better for everyoneâ¦..
_________________
Craig - Patient - Male - 56 years old - Lewy Bodies diagnosed on March 23, 2011 - cognitive disorder NOS dx 2007 - RBD REM dx 2007 issues for 20+ years - intention tremor 1974 - other issues many years
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| Sun Nov 06, 2011 3:32 pm |
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mockturtle
Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3018
Location: WA
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Re: Headed to Mayoâ¦HABIT programâ¦Update day 4â¦. Craig, all I can say is: Wow! 
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Pat [67] married to Derek [83] for 37 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011.
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| Sun Nov 06, 2011 5:03 pm |
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Ger
Joined: Mon Feb 21, 2011 9:55 pm
Posts: 354
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Re: Headed to Mayoâ¦HABIT programâ¦Update day 4â¦. I'm so happy for you, Craig. You are an inspiration!!! Ger xx
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cared for Dad who passed away on January 28th 2013 R.I.P.
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| Sun Nov 06, 2011 6:00 pm |
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robin
Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
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Re: Headed to Mayoâ¦HABIT programâ¦Update day 4â¦. Craig,
Glad to hear all went so well. Thanks for the new term - Cognitive Disorder NOS. Does Mayo think you have Cognitive Disorder NOS?
Robin
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| Sun Nov 06, 2011 6:14 pm |
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BayouCajun
Joined: Tue Mar 29, 2011 3:02 pm
Posts: 386
Location: East TN
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Re: Headed to Mayoâ¦HABIT programâ¦Update day 4â¦. Robin,
Mayo has me tagged MCIâ¦.Lewy Bodyâ¦.and a whole bunch of other unpleasant thingsâ¦.
I guess when I eventually lose my independenceâ¦.we can drop the (M)â¦.mildâ¦.
I do realize that tags have broader meanings and uses than just being correctâ¦.
Pleasantries, niceties, access, legalâ¦.take your pickâ¦.
I was tagged Cognitive Disorder NOS 4 years agoâ¦..and again 1 year agoâ¦.pre Mayoâ¦.
by Neuro Psych Exams in Knoxville areaâ¦.one at Patricia Neal Rehab Centerâ¦..just not bad enoughâ¦..I guessâ¦..
so, lumping that in hereâ¦..is all from meâ¦.and the rough road of experienceâ¦.
Pat,
Ger,
thanksâ¦.for the kind words...
_________________
Craig - Patient - Male - 56 years old - Lewy Bodies diagnosed on March 23, 2011 - cognitive disorder NOS dx 2007 - RBD REM dx 2007 issues for 20+ years - intention tremor 1974 - other issues many years
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| Sun Nov 06, 2011 7:43 pm |
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mbell
Joined: Tue Mar 29, 2011 3:09 pm
Posts: 20
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Re: Headed to Mayoâ¦HABIT programâ¦Update day 4â¦. Hi Craig,
You sound so upbeat it is contagious! Thank you very much for sharing with all of us "out here". I eagerly look for new posts from you on how you and your daughter are doing. I think I can safely say that each of us who read what you write learn something that we can apply to benefit the ones we care for. Please keep us updated.
Prayers,
Marilyn
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| Mon Nov 07, 2011 12:31 am |
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BayouCajun
Joined: Tue Mar 29, 2011 3:02 pm
Posts: 386
Location: East TN
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Re: Headed to Mayoâ¦HABIT programâ¦Update day 4â¦. robin,
thanks for the kind wordsâ¦tooâ¦
Marilyn,
its Show Time! or part time Superman!
you knowâ¦.I hope I amâ¦.
but, todayâ¦.I face fearâ¦.real fearâ¦.
I am alone todayâ¦.just meâ¦
a place where I can't exist for very much longerâ¦
after being immersed and bathed in love, kindness, understanding, trust-fall buildingâ¦never being left aloneâ¦..
never being left to do nothingâ¦
privileged to be doing that with some of the worlds greatestsâ¦..on both sides of the tablesâ¦.
the whole nine yardsâ¦.
I learned there, that everyone deals with this differentlyâ¦.one size does not fit allâ¦.
this is my wayâ¦
All of youâ¦are my Familyâ¦.you are my refugeâ¦.I feel safe hereâ¦I come here to not be aloneâ¦
I come here to learn how to findâ¦real people like you...
_________________
Craig - Patient - Male - 56 years old - Lewy Bodies diagnosed on March 23, 2011 - cognitive disorder NOS dx 2007 - RBD REM dx 2007 issues for 20+ years - intention tremor 1974 - other issues many years
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| Mon Nov 07, 2011 1:18 am |
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cdw
Joined: Fri Nov 05, 2010 11:30 pm
Posts: 302
Location: southern cali
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Re: Headed to Mayoâ¦HABIT programâ¦Update day 4â¦. craig.. thank you for being you and sharing so freely..
like others have said, i have learned so much from you.. i so appreciate the time and thought that goes into them... hubby doesnt share his thoughts or feelings, especially about lewy.. so by reading yours and tonyas posts, it helps me to guess a little better what he might be thinking and what i can do to help..
glad you learned so much from your stay.. and happy your daughter was their with you..
take care!!
cindi
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CG for hubby. started showing symptoms in 2000, at 55, diagnosed at with AD at 62, LB at 64.. vietnam vet.. has ptsd, which doubled the chances for dementia...sprayed with agent orange. showing signs of parkinsons.
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| Mon Nov 07, 2011 11:32 am |
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