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 Welcome back to all ! 
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Welcome back to all !
So glad we are up and running again, I know it was a long time down and everything looks good, just want you all to know I missed you all and if there are any problems anyone is having please contact me.

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Irene Selak


Tue May 31, 2011 10:49 am
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Joined: Fri Nov 05, 2010 11:30 pm
Posts: 317
Location: southern cali
Post Re: Welcome back to all !
so glad you are too!!! didnt realize how much i had come to rely on this forum for info and a pick me up.. glad to see its back and up and running~~
thanks irene!

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sole CG for hubby.1st symptoms, 2000, at 55. Diag with AD at 62, LB at 64.. vietnam vet..100% ptsd disability,sprayed with agent orange, which doubled chances for dementia. ER visit 11-13,released to memory care..


Tue May 31, 2011 10:51 am
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Joined: Tue Mar 29, 2011 3:02 pm
Posts: 386
Location: East TN
Post Re: Welcome back to all !
thanks for coming back…it has been lonely on this side

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Craig - Patient - Male - 56 years old - Lewy Bodies diagnosed on March 23, 2011 - cognitive disorder NOS dx 2007 - RBD REM dx 2007 issues for 20+ years - intention tremor 1974 - other issues many years


Tue May 31, 2011 1:13 pm
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Joined: Wed Sep 30, 2009 8:25 am
Posts: 227
Post Re: Welcome back to all !
Woot!!!

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Donna (age 56) caregiver for mother-in-law Margaret (age 88).


Wed Jun 01, 2011 11:47 am
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3305
Location: Vermont
Post Re: Welcome back to all !
I hope we haven't permanently lost some of the folks who relied on the forum..... :cry: I've emailed several to let them know the forum is back up and hope we will get more back here soon.

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Thu Jun 02, 2011 9:15 pm
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Joined: Fri Dec 31, 2010 3:07 pm
Posts: 1039
Location: Minnesota
Post Re: Welcome back to all !
Irene, has a message gone out to all newletter subscribers? I thought I was on that list but I never received a notice. I discovered that this was back up by checking every few days.

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Jeanne, 68 cared for husband Coy, 86. RBD for 30+ years; LDB since 2003, Coy at home, in early stage, until death in 2012


Wed Jun 08, 2011 10:17 pm
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Joined: Sun Oct 21, 2007 4:18 pm
Posts: 835
Location: Acton, MA
Post Re: Welcome back to all !
I also thought I was on the News letter list but never received any notice.

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Gerry 67, cared for Frank 71, married 49 yrs; dx 2004, passed away October 26, 2011.


Thu Jun 09, 2011 5:42 am
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: Welcome back to all !
I believe there has been a delay in sending it out to make sure we had worked out all the kinks.

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Irene Selak


Thu Jun 09, 2011 11:06 pm
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Joined: Fri Dec 31, 2010 3:07 pm
Posts: 1039
Location: Minnesota
Post Re: Welcome back to all !
That is good to know, Irene. It doesn't look like very many of us have found our way back. I expect that will change when an announcement goes out.

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Jeanne, 68 cared for husband Coy, 86. RBD for 30+ years; LDB since 2003, Coy at home, in early stage, until death in 2012


Thu Jun 09, 2011 11:40 pm
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: Welcome back to all !
I believe the e-mail is going out today, for the LBDA wasn't just dealing with the forums, it was everything but we are starting to look good I think !

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Irene Selak


Fri Jun 10, 2011 10:05 am
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Joined: Sun Aug 29, 2010 5:46 pm
Posts: 610
Post Re: Welcome back to all !
Thanks to everyone at LBDA for doing the hard work of getting the web site and the forum back up and running. It is so important.

Julianne


Fri Jun 10, 2011 11:53 am
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Joined: Tue Mar 29, 2011 3:09 pm
Posts: 20
Post Re: Welcome back to all !
It was so nice to see things are back up and running again. I felt like my life-line was gone there for awhile! I also would like to thank everyone involved in making this happen. Love and prayers to all.

Marilyn


Sat Jun 11, 2011 1:52 am
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Welcome back to all !
Irene,
The email button functionality is not working for me. I don't know if it has been working since the Forum was down earlier this month but it hasn't been working for me so far this week. You can test this by sending yourself an email.
Robin


Thu Jun 30, 2011 1:49 pm
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: Welcome back to all !
Robin,
I just sent you a reply via e-mail , lets see if it goes through!

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Irene Selak


Fri Jul 01, 2011 9:16 pm
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Welcome back to all !
Irene,
I have received no email from you, from myself, or from anyone else who has used the email button. It doesn't work.
Robin


Sat Jul 02, 2011 12:05 am
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