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irene selak
Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1940
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 Welcome back to all ! So glad we are up and running again, I know it was a long time down and everything looks good, just want you all to know I missed you all and if there are any problems anyone is having please contact me.
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Some forum members may be intense in sharing what they have found to be useful/recommend certain resources.While meaning well, some comments may seem rather strong. Please contact me with any concerns.
Irene Selak
LBDA Forum Moderator
http://www.lbda.org
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| Tue May 31, 2011 10:49 am |
 
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cdw
Joined: Fri Nov 05, 2010 11:30 pm
Posts: 298
Location: southern cali
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Re: Welcome back to all ! so glad you are too!!! didnt realize how much i had come to rely on this forum for info and a pick me up.. glad to see its back and up and running~~
thanks irene!
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CG for hubby. started showing symptoms in 2000, at 55, diagnosed at with AD at 62, LB at 64.. vietnam vet.. has ptsd, which doubled the chances for dementia...sprayed with agent orange. showing some signs of parkinsons.
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| Tue May 31, 2011 10:51 am |
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BayouCajun
Joined: Tue Mar 29, 2011 3:02 pm
Posts: 386
Location: East TN
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Re: Welcome back to all ! thanks for coming backâ¦it has been lonely on this side
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Craig - Patient - Male - 56 years old - Lewy Bodies diagnosed on March 23, 2011 - cognitive disorder NOS dx 2007 - RBD REM dx 2007 issues for 20+ years - intention tremor 1974 - other issues many years
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| Tue May 31, 2011 1:13 pm |
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dagoetz
Joined: Wed Sep 30, 2009 8:25 am
Posts: 227
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Re: Welcome back to all ! Woot!!!
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Donna (age 56) caregiver for mother-in-law Margaret (age 88).
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| Wed Jun 01, 2011 11:47 am |
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LTCVT
Joined: Fri Jan 15, 2010 9:33 pm
Posts: 2822
Location: Vermont
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Re: Welcome back to all ! I hope we haven't permanently lost some of the folks who relied on the forum.....  I've emailed several to let them know the forum is back up and hope we will get more back here soon.
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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.
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| Thu Jun 02, 2011 9:15 pm |
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JeanneG
Joined: Fri Dec 31, 2010 3:07 pm
Posts: 1037
Location: Minnesota
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Re: Welcome back to all ! Irene, has a message gone out to all newletter subscribers? I thought I was on that list but I never received a notice. I discovered that this was back up by checking every few days.
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Jeanne, 66 caring for husband Coy, 85. RBD for 30+ years; LDB since 2003, Coy still at home, in early stage
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| Wed Jun 08, 2011 10:17 pm |
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Gerry
Joined: Sun Oct 21, 2007 4:18 pm
Posts: 835
Location: Acton, MA
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Re: Welcome back to all ! I also thought I was on the News letter list but never received any notice.
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Gerry 67, cared for Frank 71, married 49 yrs; dx 2004, passed away October 26, 2011.
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| Thu Jun 09, 2011 5:42 am |
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irene selak
Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1940
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Re: Welcome back to all ! I believe there has been a delay in sending it out to make sure we had worked out all the kinks.
_________________
Some forum members may be intense in sharing what they have found to be useful/recommend certain resources.While meaning well, some comments may seem rather strong. Please contact me with any concerns.
Irene Selak
LBDA Forum Moderator
http://www.lbda.org
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| Thu Jun 09, 2011 11:06 pm |
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JeanneG
Joined: Fri Dec 31, 2010 3:07 pm
Posts: 1037
Location: Minnesota
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Re: Welcome back to all ! That is good to know, Irene. It doesn't look like very many of us have found our way back. I expect that will change when an announcement goes out.
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Jeanne, 66 caring for husband Coy, 85. RBD for 30+ years; LDB since 2003, Coy still at home, in early stage
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| Thu Jun 09, 2011 11:40 pm |
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irene selak
Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1940
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Re: Welcome back to all ! I believe the e-mail is going out today, for the LBDA wasn't just dealing with the forums, it was everything but we are starting to look good I think !
_________________
Some forum members may be intense in sharing what they have found to be useful/recommend certain resources.While meaning well, some comments may seem rather strong. Please contact me with any concerns.
Irene Selak
LBDA Forum Moderator
http://www.lbda.org
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| Fri Jun 10, 2011 10:05 am |
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Julianne
Joined: Sun Aug 29, 2010 5:46 pm
Posts: 600
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Re: Welcome back to all ! Thanks to everyone at LBDA for doing the hard work of getting the web site and the forum back up and running. It is so important.
Julianne
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| Fri Jun 10, 2011 11:53 am |
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mbell
Joined: Tue Mar 29, 2011 3:09 pm
Posts: 20
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Re: Welcome back to all ! It was so nice to see things are back up and running again. I felt like my life-line was gone there for awhile! I also would like to thank everyone involved in making this happen. Love and prayers to all.
Marilyn
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| Sat Jun 11, 2011 1:52 am |
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robin
Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
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Re: Welcome back to all ! Irene,
The email button functionality is not working for me. I don't know if it has been working since the Forum was down earlier this month but it hasn't been working for me so far this week. You can test this by sending yourself an email.
Robin
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| Thu Jun 30, 2011 1:49 pm |
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irene selak
Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1940
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Re: Welcome back to all ! Robin,
I just sent you a reply via e-mail , lets see if it goes through!
_________________
Some forum members may be intense in sharing what they have found to be useful/recommend certain resources.While meaning well, some comments may seem rather strong. Please contact me with any concerns.
Irene Selak
LBDA Forum Moderator
http://www.lbda.org
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| Fri Jul 01, 2011 9:16 pm |
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robin
Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
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Re: Welcome back to all ! Irene,
I have received no email from you, from myself, or from anyone else who has used the email button. It doesn't work.
Robin
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| Sat Jul 02, 2011 12:05 am |
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