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 Financial considerations from moment of diagnosis 
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3369
Location: Vermont
Post Re: Financial considerations from moment of diagnosis
Well said, Nan. The stress can really get to the caregiver big time! Take good care of yourselves so you aren't a casualty of the disease too. Lynn

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Tue May 03, 2011 2:44 pm
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: Financial considerations from moment of diagnosis
BC,
I am glad for 2 things for you, that your wife is getting help for herself and her problems and that your daughters are helping you muddle through the things that need to be done !!

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Irene Selak


Tue May 03, 2011 4:05 pm
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: Financial considerations from moment of diagnosis
Nan,
I am glad you are just taking one day at a time, that's all most of us can do!

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Irene Selak


Tue May 03, 2011 4:06 pm
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Joined: Fri Dec 31, 2010 3:07 pm
Posts: 1039
Location: Minnesota
Post Re: Financial considerations from moment of diagnosis
Good insight, Nan.

Craig, I am glad that your daughters are coming forward. One day at a time, you'll all get through this, making each day as good as it can be.

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Jeanne, 68 cared for husband Coy, 86. RBD for 30+ years; LDB since 2003, Coy at home, in early stage, until death in 2012


Tue May 03, 2011 4:59 pm
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Joined: Tue Mar 29, 2011 3:02 pm
Posts: 386
Location: East TN
Post Re: Financial considerations from moment of diagnosis
Long Term Disability was approved and started paying last week. What a relief.

A lot of other stuff going on too…good and bad….of course…but at least I have money coming in again.

_________________
Craig - Patient - Male - 56 years old - Lewy Bodies diagnosed on March 23, 2011 - cognitive disorder NOS dx 2007 - RBD REM dx 2007 issues for 20+ years - intention tremor 1974 - other issues many years


Tue May 31, 2011 1:16 pm
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3369
Location: Vermont
Post Re: Financial considerations from moment of diagnosis
That's great Craig. I think with LTD you can also go on Medicare. At least that's what happened to a friend of mine who had a stroke at age 52 and could not return to work as an engineer. I'm glad you have some $ coming in again. Lynn

_________________
Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Tue May 31, 2011 4:53 pm
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: Financial considerations from moment of diagnosis
BC,
I am so glad you disability was approved.

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Irene Selak


Tue May 31, 2011 6:59 pm
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Joined: Tue Dec 29, 2009 2:28 pm
Posts: 464
Location: Minnesota
Post Re: Financial considerations from moment of diagnosis
Hi, Craig. Gee, I haven't been looking on this section much, so missed much of your struggle. I'm so glad you have your disability now. How about your house? Did the bank give you a break? Or did you need to find something else?

Terrific that your wife and daughters are stepping up - even if your wife has her own demons to fight. And good for her for fighting them. You and your family (now that they truly understand the issue) are an example of "when the going gets tough, the tough get going." The "tough" just needed to understand how tough the situation is.

Tonya, about driving. My sister has been on disability for years (severe depression and PTSD). She never stopped driving and has had to drive for her medical appointments. Lately, as a writer, she has even worked a bit. I think there's a dollar limit that you can earn. I know there is with plain old Social Security.

Best wishes to both of you. Keep up the good work. We're in your corner.

Kate

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Kate [i](Cared for Mom for years before anyone else noticed the symptoms, but the last year of her life was rough and we needed to place her in an SNF, where she passed in February 2012)[/i]


Wed Jun 01, 2011 1:41 pm
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Joined: Tue Mar 29, 2011 3:02 pm
Posts: 386
Location: East TN
Post Re: Financial considerations from moment of diagnosis
I have been kinda avoiding setting up an appointment with an elder law attorney….

not anymore…

I have an appointment set up in mid July….to strategize….and get this stuff done….

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Craig - Patient - Male - 56 years old - Lewy Bodies diagnosed on March 23, 2011 - cognitive disorder NOS dx 2007 - RBD REM dx 2007 issues for 20+ years - intention tremor 1974 - other issues many years


Mon Jun 27, 2011 9:46 pm
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Joined: Fri Dec 31, 2010 3:07 pm
Posts: 1039
Location: Minnesota
Post Re: Financial considerations from moment of diagnosis
Hey, good for you, Craig! Get the nitty gritty hard work stuff behind you so you can focus on enjoying yourself

_________________
Jeanne, 68 cared for husband Coy, 86. RBD for 30+ years; LDB since 2003, Coy at home, in early stage, until death in 2012


Mon Jun 27, 2011 10:37 pm
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: Financial considerations from moment of diagnosis
CJ,
I am glad your getting these important things done for yourself, Good Luck with it all .

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Irene Selak


Mon Jun 27, 2011 10:52 pm
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Joined: Tue Mar 29, 2011 3:02 pm
Posts: 386
Location: East TN
Post Re: Financial considerations from moment of diagnosis
downsizing….preparing for big garage sale…

recieved offer on house….either bank takes offer or takes house….either way…..

preparing for living financially single….

alot going on….

_________________
Craig - Patient - Male - 56 years old - Lewy Bodies diagnosed on March 23, 2011 - cognitive disorder NOS dx 2007 - RBD REM dx 2007 issues for 20+ years - intention tremor 1974 - other issues many years


Sun Jul 10, 2011 10:13 pm
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Joined: Tue Mar 29, 2011 3:02 pm
Posts: 386
Location: East TN
Post Re: Financial considerations from moment of diagnosis
very emotional moment….

drafting the end of life documents…

giving the power of life and financial independence over to someone else on a legal document…and paying for that priviledge…

trip to elder law attorney was necesarry and very draining….

_________________
Craig - Patient - Male - 56 years old - Lewy Bodies diagnosed on March 23, 2011 - cognitive disorder NOS dx 2007 - RBD REM dx 2007 issues for 20+ years - intention tremor 1974 - other issues many years


Mon Jul 11, 2011 3:34 pm
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Joined: Mon Feb 21, 2011 9:55 pm
Posts: 355
Post Re: Financial considerations from moment of diagnosis
Well done Craig! Now that awful job is out of the way, you can put it behind you as much as you can, and be proud of all you have achieved since you became ill. I'm proud of you and I hardly know you !! - but listening to how articulate you are, how you are getting on with it, how you are putting your best foot forward, you sound like a man that will not be put down. It must be so difficult, but try to be positive, and when you feel down, talk to us. God Bless,
Ger x

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cared for Dad who passed away on January 28th 2013 R.I.P.


Mon Jul 11, 2011 3:50 pm
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: Financial considerations from moment of diagnosis
Your doing a great job, lining your ducks in a neat row, be proud of yourself, you desreve it !

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Irene Selak


Tue Jul 12, 2011 7:44 am
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