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 Hospice 
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Joined: Thu Dec 02, 2010 1:44 am
Posts: 93
Post Re: Hospice
Hugs to you Leone, Bernie


Thu Mar 17, 2011 7:14 pm
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Joined: Sun Oct 21, 2007 4:18 pm
Posts: 835
Location: Acton, MA
Post Re: Hospice
Leone, I haven't been posting lately but do read a few times a day and wanted you to know my heart and thoughts are with you and Dale. It's so sad, and the rest of us will have this, or a similar journey ahead of us that you will have helped us understand.

Take care of yourself and thank you,
Gerry

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Gerry 67, cared for Frank 71, married 49 yrs; dx 2004, passed away October 26, 2011.


Thu Mar 17, 2011 7:29 pm
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Joined: Fri Nov 05, 2010 11:30 pm
Posts: 317
Location: southern cali
Post Re: Hospice
leone..

you and dale are in my thoughts..

cindi

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sole CG for hubby.1st symptoms, 2000, at 55. Diag with AD at 62, LB at 64.. vietnam vet..100% ptsd disability,sprayed with agent orange, which doubled chances for dementia. ER visit 11-13,released to memory care..


Thu Mar 17, 2011 7:52 pm
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Hospice
mockturtle wrote:
when they are not getting any hydration, their skin breaks down rapidly. There is almost no way to prevent it all.
After the spots on his hips appeared, we put pillows around him and that works pretty well. The spots that surprised me were on his legs and feet. He sleeps with his legs bent and one foot causes sores on the other. He now has one place on one leg which has broken through the skin but not bled. Another is on one swollen foot. It is angry red and looks like he must have had one heal on the other foot. I tried to prevent that with sox but that didn't work so we have now put fluffy towels between his feet. You are right that it's a battle we can't win.

I really thought an air mattress and the Tempur-pedic pad on top was the answer. It is not!

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Thu Mar 17, 2011 7:53 pm
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Joined: Mon Feb 21, 2011 9:55 pm
Posts: 355
Post Re: Hospice
Leone, you are doing such an amazing job. Dale is so lucky to have you caring for him so well and catering to his every need. You are his ever present guardian angel.

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cared for Dad who passed away on January 28th 2013 R.I.P.


Thu Mar 17, 2011 8:02 pm
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3317
Location: Vermont
Post Re: Hospice
Yes, Leone, you are doing an amazing job of caregiving and keeping it together during Dale's transition. It takes an amazing amount of strength to help a LO through this process. Giant hug, Lynn

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Thu Mar 17, 2011 10:24 pm
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Hospice - still breathing
After more than 24 hours with a loud 'death rattle,' Dale is sleeping quietly this morning. I gave him medication about midnight last night. After no urine production all day yesterday, the bag is now half filled with a dark tea colored liquid. He has had nothing to drink since Monday.. so the body is allowing the remainder in his bladder to go.

I slept fitfully.... but I'll take naps today. His brother is coming from Fayetteville... It will take him about 10 hours to drive down.

Thank you so much for all the encouraging messages.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Fri Mar 18, 2011 8:21 am
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Joined: Sun Aug 29, 2010 5:46 pm
Posts: 610
Post Re: Hospice
Leone, I think of you and Dale so often. Thank you for sharing your very personal journey with us. I believe it will help many of us who are traveling behind you. I wish you continued courage and strength.

Julianne


Fri Mar 18, 2011 12:25 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Hospice
Leone, all I can say is that I am with you in spirit and I'm sending warm hugs your way and fervent prayers God's way.

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Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Fri Mar 18, 2011 12:41 pm
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Joined: Mon Feb 21, 2011 9:55 pm
Posts: 355
Post Re: Hospice
Leone, I'm so glad you will have some support with Dale's brother coming. Please God, Dale will soon make his journey, and you will finally be able to rest. God Bless and sending all my love, prayers and hugs, Ger.

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cared for Dad who passed away on January 28th 2013 R.I.P.


Fri Mar 18, 2011 1:29 pm
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Joined: Wed Mar 09, 2011 12:22 am
Posts: 75
Post Re: Hospice
Oh Leone, my heart is with you and Dale. You are coming to the end of a journey where we will all end up with our LOs. My heart hurts for you and is also glad that the journey is just about done. Such a horrid disease this is! It hurts so many people.

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~~Debra, 52, wife to Chris, 64 DX Vascular Dementia 9/10; Alz 10 or 11/2010; Pseudo Dementia 01/11; LBD in 03/11..Was at home until 4/29, 2011, now in a Alz fac./dementia unit.
Image


Sat Mar 19, 2011 12:35 pm
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Joined: Mon Feb 21, 2011 9:55 pm
Posts: 355
Post Re: Hospice
Leone, it is 10am here in Ireland. I hope you are doing ok. I think of, and pray for, Dale and your good self every night before I go to sleep, and 1st thing every morning when I wake. God Bless xxx

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cared for Dad who passed away on January 28th 2013 R.I.P.


Sun Mar 20, 2011 6:01 am
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Joined: Wed Oct 08, 2008 10:30 pm
Posts: 976
Location: Henderson, Nv.
Post Re: Hospice
Your journey is coming to an end. The angels will take Dale under their wings and guide him home. Take pride in the good care you gave your LO, take good care of yourself and allow yourself plenty of time to grieve.
Dianne

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Dianne C.


Fri Mar 25, 2011 7:21 am
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Hospice
Thanks, Dianne. I abandoned this thread toward the very end when it was clear that Dale was dying. Dale passed away on Wednesday, March 23 just before 7 am. I'm happy that he is free of pain.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Fri Mar 25, 2011 9:40 am
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