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 Welcome to LBDA's Discussion Forums - Read this post first!! 
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Welcome to LBDA's Discussion Forums - Read this post fir
True, but I would be happy to e-mail you the pdf file.

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Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Tue Mar 15, 2011 11:29 am
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Welcome to LBDA's Discussion Forums - Read this post fir
mockturtle,
perhaps you can simply email the document to blevd.
Robin


Tue Mar 15, 2011 12:41 pm
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: Welcome to LBDA's Discussion Forums - Read this post fir
http://www.lbda.org/feature/1347/diagno ... bodies.htm

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Irene Selak


Tue Mar 15, 2011 1:31 pm
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Joined: Fri Dec 31, 2010 3:07 pm
Posts: 1039
Location: Minnesota
Post Re: Welcome to LBDA's Discussion Forums - Read this post fir
Thank you, Irene. This is the url I have been providing, too. Does it change from time to time? It would be good to be able to tell others where it is that would be useful in the future to people coming across our posts. This seems to be an often-referenced document.

Also, this is from 2004. Is there anything more recent that is similar, or has Boeve done an update?

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Jeanne, 68 cared for husband Coy, 86. RBD for 30+ years; LDB since 2003, Coy at home, in early stage, until death in 2012


Tue Mar 15, 2011 3:06 pm
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Welcome to LBDA's Discussion Forums - Read this post fir
You can see the link provided as the first post in this thread. The link no longer works. Everytime LBDA revises its website, the links change and there's no nice transition from a "dead link" to a new link.


Tue Mar 15, 2011 6:02 pm
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Welcome to LBDA's Discussion Forums - Read this post fir
JeanneG wrote:
Look on Pat's computer is probably not the right answer. :lol:
I love that, Jeanne. You made me giggle and I needed that right now. Let's all go to Pat's house and find her computer.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Tue Mar 15, 2011 6:36 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Welcome to LBDA's Discussion Forums - Read this post fir
Gee, thanks, you guys! :lol: The point I was trying [not too successfully] to make was that, with these disappearing links, it's better to just download the document while you can as it might not be available later.

_________________
Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Tue Mar 15, 2011 6:42 pm
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Welcome to LBDA's Discussion Forums - Read this post fir
We knew that, Pat, but it's lots of fun to think of all of us decending on your house playing some version of hide and go seek.... :lol:

Actually, I also downloaded the file on my computer a long time ago. Once you find it, that's the best plan. It certainly is an essential document for Lewy. I also gave a copy to Dale's neurologist and he apparently chose not to read it. :evil:

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Tue Mar 15, 2011 7:11 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Welcome to LBDA's Discussion Forums - Read this post fir
Actually, you are all welcome any time! :P I'll make you a cup of coffee or tea!

_________________
Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Tue Mar 15, 2011 7:21 pm
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: Welcome to LBDA's Discussion Forums - Read this post fir
Jeanne.
It can be hard to find and Robin is correct when changes are made the link can become useless but until someone tells LBDA they don't know about it !

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Irene Selak


Wed Mar 16, 2011 3:37 pm
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Joined: Wed Nov 30, 2011 6:49 pm
Posts: 1
Post Re: Welcome to LBDA's Discussion Forums - Read this post fir
Neither of these links works. I'd like more information but can't access these articles.


Thu Dec 01, 2011 1:24 pm
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Welcome to LBDA's Discussion Forums - Read this post fir
Unfortunately every time the LBDA updates its website, the links get broken. It's probably best to start at lbda.org and read everything under the "Learn about LBD" purple menu item.


Thu Dec 01, 2011 2:47 pm
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