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 Welcome to LBDA's Discussion Forums - Read this post first!! 
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Joined: Mon Jun 05, 2006 3:29 pm
Posts: 93
Location: State College, PA
Post Welcome to LBDA's Discussion Forums - Read this post first!!
If you are a first time visitor, we are glad you are here! This is an excellent place to share your questions on LBD, and pass along any caregiving tips and LBD information that has helped you along the way. Please read the forum guidelines found here: http://community.lbda.org/forum/viewtopic.php?t=11 and then browse the different forums on Symptoms and Diagnosis, Behavioral Issues, and Medications. Don’t forget our Respite Room is available for any non-LBD topics as well!

We strongly recommend two key articles (written by members of LBDA’s Scientific Advisory Council) as excellent educational materials for caregivers. In fact, many of your questions about LBD may very well be answered in these two articles! You can read a comprehensive article on diagnosis and treatment of dementia with Lewy bodies by Mayo Clinic’s Dr. Brad Boeve here: http://lbda.org/content/lbd-requires-comprehensive-treatment-approach. The second article, by Tanis Ferman, PhD and colleagues at Mayo Clinic, addresses managing the behavioral challenges of dementia, and can be found here: http://lbda.org/content/understanding-behavioral-changes-dementia.

Please remember that this forum is a caregiver-to-caregiver resource, and is NOT intended as a substitute for professional medical advice. Any suggestions you read here regarding diagnosis or treatment options (including those provided by LBDA volunteers) should be discussed with your doctor, to find out if it is appropriate for your particular situation.

The forum moderator is Irene Selak, who works hard to make all members feel welcome and keeps the forum free from spam. (Please do let her know if someone is posting links to commercial or inappropriate sites, so she can delete the post and notify LBDA.)

In hope,

Angela Taylor
Lewy Body Dementia Association

Increasing Knowledge, Sharing Experience, Building Hope


Last edited by mlrife on Thu Jan 26, 2012 12:45 am, edited 1 time in total.

Updated inaccurate and outdated links.



Thu Aug 02, 2007 9:16 pm
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Joined: Fri Dec 07, 2007 10:38 am
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Location: Minneapolis, MN
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Then I know I am in the right place, since Dr. Boeve is one of my husband's docs....God bless.

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Susan, wife of John - dx with PAF 2004, then MSA in 2006, then DLB in 2007.


Sat Dec 08, 2007 8:36 am
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Post 
islandmarsh wrote:
Then I know I am in the right place,


Welcome, you are in the right place, if you are in the need of information, comfort and honest answers! We now have so many topics in our forums and hit upon most subjects, this is a place people have been coming in ther need of LBD info for 18 months now! :)


Sat Dec 08, 2007 9:10 am

Joined: Sun Aug 29, 2010 5:46 pm
Posts: 610
Post Re: Welcome to LBDA's Discussion Forums - Read this post fir
FYI, link to Ferman et al. article does not appear to be working.


Tue Sep 28, 2010 1:02 pm
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: Welcome to LBDA's Discussion Forums - Read this post fir
Julianne,
Thanks for the heads up I will make sure the correct person checks on it!

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Irene Selak


Tue Sep 28, 2010 1:58 pm
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Joined: Mon Mar 14, 2011 12:42 am
Posts: 2
Post Re: Welcome to LBDA's Discussion Forums - Read this post fir
I am a new user. The link to Dr. Boeve's paper does not seem to be working. Is it still available? I was able to download the Ferman paper and look forward to reading it. Tnanks, blevd


Mon Mar 14, 2011 3:56 pm
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Welcome to LBDA's Discussion Forums - Read this post fir
I don't post links any more to Boeve's paper because everytime the LBDA does a website change, the links die. So...I suggest going to lbda.org and do a search for "Boeve 2004 Continuum" and you'll see it among the results list.


Mon Mar 14, 2011 9:09 pm
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Joined: Fri Dec 31, 2010 3:07 pm
Posts: 1039
Location: Minnesota
Post Re: Welcome to LBDA's Discussion Forums - Read this post fir
I wondered why you didn't give a url, Robin. Thanks for explaining.

Right now the search for "Boeve 2004 Continuum" returns 21 choices and it isn't easy to know which one to select, because it does not use the word Continuum in the description. It may help to know that the title in the search results is Diagnostic Review & Medicine Management of Dementia with Lewy Bodies That takes you to a longer description, with a link near the bottom to see the full article.

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Jeanne, 68 cared for husband Coy, 86. RBD for 30+ years; LDB since 2003, Coy at home, in early stage, until death in 2012


Mon Mar 14, 2011 9:28 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Welcome to LBDA's Discussion Forums - Read this post fir
I downloaded it about two years ago as a pdf file.

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Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Mon Mar 14, 2011 9:45 pm
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Joined: Fri Dec 31, 2010 3:07 pm
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Location: Minnesota
Post Re: Welcome to LBDA's Discussion Forums - Read this post fir
So have I -- but you've got to find it first! :roll:

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Jeanne, 68 cared for husband Coy, 86. RBD for 30+ years; LDB since 2003, Coy at home, in early stage, until death in 2012


Mon Mar 14, 2011 9:56 pm
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Welcome to LBDA's Discussion Forums - Read this post fir
And blevd is new...


Mon Mar 14, 2011 10:00 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Welcome to LBDA's Discussion Forums - Read this post fir
JeanneG wrote:
So have I -- but you've got to find it first! :roll:
It's stored on my computer. I'm afraid I don't understand... :?: Or, are you saying you can't find it on your computer? BTDT. :lol:

_________________
Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Tue Mar 15, 2011 9:40 am
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Welcome to LBDA's Discussion Forums - Read this post fir
blevd is new, so he/she doesn't have it on his/her computer.


Tue Mar 15, 2011 10:20 am
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Joined: Wed Dec 30, 2009 1:46 pm
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Location: WA
Post Re: Welcome to LBDA's Discussion Forums - Read this post fir
I was referring to the 'Boeve 2004 Continuum'.

_________________
Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Tue Mar 15, 2011 10:34 am
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Joined: Fri Dec 31, 2010 3:07 pm
Posts: 1039
Location: Minnesota
Post Re: Welcome to LBDA's Discussion Forums - Read this post fir
We are just trying to explain how to find this very useful document. Look on Pat's computer is probably not the right answer. :lol:

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Jeanne, 68 cared for husband Coy, 86. RBD for 30+ years; LDB since 2003, Coy at home, in early stage, until death in 2012


Tue Mar 15, 2011 10:50 am
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