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 Returning to Group 
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Joined: Fri Dec 17, 2010 12:23 pm
Posts: 5
Post Returning to Group
It has been a very long time since I posted on this Forum so I will reintroduce myself. I am an American but have lived most of my life in Italy where my husband, Renzo, was diagnosed with LBD exactly 4 years ago. On April 25, 2009 I moved Renzo, myself and my dog, Ugo, back to the USA after 40 years. Primarily the move was for me to be closer to my family. I am not sure I made the right move but here I am. I have been posting on the Caringspouses Group for many years but I no longer felt welcome; in fact I felt very unwelcome.

Renzo is probably in stage 3 and although is still mobile is showing serious signs of deteriorating. This past month he fell from bed, banging his head. Two days later he began having seizures which we are keeping under control with anti seizure meds.

This is more than enough for a first post. I look forward to getting to know you. IreneM

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IreneM (65) married to Renzo (75) dxd 1/06 with LBD. Probable Stage 3


Fri Dec 17, 2010 8:23 pm
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: Returning to Group
Irene,
Re-Welcome! I am glad you came back, you will see some familiar names here !

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Irene Selak


Fri Dec 17, 2010 8:40 pm
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Returning to Group
It's so good to see you here, Irene (M).... I am personally thrilled! Welcome back. I also returned here after a period when I thought I knew everything. :lol: (joke, joke) I came back when Dale took a downturn and I wanted more answers. I have found a home here and absolutely love the format. I hope you will be as happy here as I am. (((((big hug)))))

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Fri Dec 17, 2010 8:46 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Returning to Group
Welcome back, Irene! Glad to see you here!!! Hugs, Pat.

_________________
Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Fri Dec 17, 2010 8:53 pm
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Joined: Thu Dec 02, 2010 1:44 am
Posts: 93
Post Re: Returning to Group
Hello, I am new to this forum but was a member of the LBD Caregivers site. I was not welcomed anymore at the Caregivers site. This is because I am a bit unconventional in my out look on life.
My husband Fran was finally dx with LBD this year, although we have been fighting this disease for almost 12 years. He had many wrong dx during this time. I am guessing that he is now in stage 4. He has very poor motor control, dementia, hallucinations and delusions. So glad to be able to post once again. Bernie


Fri Dec 17, 2010 9:27 pm
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Returning to Group
Hi Irene,

Nice to see you posting again though you've changed your username! I remember everyone fondly from the "EricSEA" days.

As I recall, the initial diagnosis for your husband seemed somewhat uncertain as he hadn't had any hallucinations. Have things changed in that regard??

I didn't know you had moved from Italy. Have you found a good MD for your husband?

Robin


Fri Dec 17, 2010 9:29 pm
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3317
Location: Vermont
Post Re: Returning to Group
Welcome to both of you and sorry for your need to be here. But, this is indeed "home" to any number of people who find it a "soft place to land" and great source of information as well. Hope you are here often. Lynn

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Fri Dec 17, 2010 9:41 pm
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Returning to Group
Welcome, Bernie! It's really nice to see you here. I hope you will really feel at home. I look forward to reading more of your keen sense of humor again. I know I will enjoy your posts. You have been a good friend and I'm so glad you've joined us here. (It will be fun to laugh again with you! We all need that!) :lol:

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Fri Dec 17, 2010 10:42 pm
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: Returning to Group
Bernie,
Welcome to the LBDA forums I hope you will find comfort here !

_________________
Irene Selak


Fri Dec 17, 2010 10:59 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Returning to Group
Hear, hear!!! :P

_________________
Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Fri Dec 17, 2010 10:59 pm
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Joined: Tue Aug 17, 2010 9:20 am
Posts: 184
Location: So Cal
Post Re: Returning to Group
Since it has been mentioned..........I joined the spouses forum but felt too much animosity as I read the posts. I'm sticking to this one, I'm too easily hurt these days......Sher

_________________
Sher (53) married 29 years to Ken (66) who was diagnosed with LBD in 2008, but it most likely began many years before.


Fri Dec 17, 2010 11:30 pm
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Joined: Tue Dec 23, 2008 8:52 am
Posts: 154
Location: Michigan
Post Re: Returning to Group
Welcome Irene, Bernie & Sher! I know you from the caring spouses forum. Bernie - love your sense of humor.

I too joined the caring spouses forum, but remained a lurker.

Karen


Fri Dec 17, 2010 11:41 pm
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Returning to Group - Sher
Your post, Sher, could have been written by any one of us. We are all wounded by this disease. I'm sending a cyber (((((hug))))) to you and all those who are hurting but don't say so. I hope we can all help each other feel good about ourselves. We are all vulnerable.

_________________
Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Sat Dec 18, 2010 12:09 am
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Joined: Sat Jul 31, 2010 5:28 pm
Posts: 317
Post Re: Returning to Group
I've always been here as this was the first forum , like most of the rest of you I no longer feel comfortable at that "other site." But I lurk there and read) I, too, am glad the rest of you are here. Smiles, Nan


Sat Dec 18, 2010 12:46 am
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Returning to Group - Nan
...and I'm glad, Nan. :P

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Sat Dec 18, 2010 7:33 am
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