View unanswered posts | View active topics It is currently Fri Aug 01, 2014 6:46 pm



Reply to topic  [ 4 posts ] 
 Book Recommendations 
Author Message

Joined: Fri Oct 19, 2012 11:25 am
Posts: 13
Post Book Recommendations
Trying to see if anybody out there can recommend a very good (informative) book regarding lbd? I have a copy of the 36 hour day, but it is very old and doesn't even recognize lbd. It's all about alzheimers. I am trying to find something with real life answers/suggestions for coping, what to expect, how to deal with the daily surges/declines in mental status/behavior, etc, etc. Any suggestions? Thanks a million. The more I can educate myself about this monster, the better I can prepare/respond.


Sat Jun 14, 2014 3:03 am
Profile

Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3317
Location: Vermont
Post Re: Book Recommendations
Terry - do a search on the forum on "books". There are many books that have been recommended over the years on here. I don't remember any names or I'd tell you, but there has been a lot of discussion a while back. Lynn

_________________
Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Sat Jun 14, 2014 8:16 am
Profile

Joined: Thu May 15, 2014 10:41 pm
Posts: 58
Location: Phoenix, AZ
Post Re: Book Recommendations
Go to the link below to access the list of resources and books. I have a few to recommend myself - will come back here and post them in a moment.

http://www.lbda.org/category/4114/books ... giving.htm

_________________
Molly - Forum moderator. My dad's career as a geologist was interrupted by PD and LBD in 2009. I was a respite caregiver for my dad (lived out of state, but visited many times a year). He passed away peacefully in April 2014.


Sat Jun 14, 2014 11:39 am
Profile

Joined: Thu May 15, 2014 10:41 pm
Posts: 58
Location: Phoenix, AZ
Post Re: Book Recommendations
Some of these may be redundant with books on the LBDA list at the link posted above, but these are books I found very helpful when I was struggling to understand what was happening with my dad. I loved Lisa Genova's novel Still Alice, about early onset Alzheimer's, and wanted to find novels about Lewy Body, because I wanted to better understand what it might feel like from the "inside out." I found Jonathan Franzen's book The Corrections had the very best fictional description - it felt very accurate to me. There is one specific chapter in there that describes the father's hallucinations while he's on a cruise ship. If I can get my hands on a copy of the book, I can share page numbers just for that passage. Anyway, here's my list of books that helped me:

Pat Snyder, Treasures in the Darkness: Extending the Early Stage of Lewy Body Dementia, Alzheimer's, and Parkinson's Disease
Whitworth, A Caregiver's Guide to Lewy Body Dementia
Burkholder, relentless goodbye: Grief and Love in the Shadow of Dementia
ann elia stewart, twice a child (novel)
Jonathan Franzen, The Corrections (novel)
John Harding, What We Did on our Holiday (novel)

_________________
Molly - Forum moderator. My dad's career as a geologist was interrupted by PD and LBD in 2009. I was a respite caregiver for my dad (lived out of state, but visited many times a year). He passed away peacefully in April 2014.


Sat Jun 14, 2014 11:53 am
Profile
Display posts from previous:  Sort by  
Reply to topic   [ 4 posts ] 

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot post attachments in this forum

Search for:
Jump to:  
Powered by phpBB © 2000, 2002, 2005, 2007 phpBB Group.
Designed by STSoftware for PTF.
Localized by MaĆ«l Soucaze © 2010 phpBB.fr