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 COPD and LBD 
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Joined: Thu Aug 15, 2013 5:39 pm
Posts: 32
Post COPD and LBD
Hi,
My husband has not been dx yet with lb, but from the diagnostic page I believe he is "probable". I am working on getting to "the talk" with him (see my intro) but my question is re: his COPD. If I'm reading the dangerous drugs lists correctly, the meds he is on for his breathing are not good for his LB. Has anyone had this issue and know if there are any safe meds for him? His pulmonolgist has left & now he has to get a new one and I would like to be prepared.
Thank you
Connie


Fri Aug 16, 2013 3:05 pm
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: COPD and LBD
Coonnie,
I would rely more on what a Neurologist says over a Pulmonolgist, when it comes to drugs that might effect LBD if in fact that is the DX , and this is why it is so important to get the DX as soon as possible.

Good Luck !

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Irene Selak


Mon Aug 19, 2013 5:37 pm
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Joined: Mon Sep 03, 2012 9:30 pm
Posts: 5
Post Re: COPD and LBD
My husband also has COPD and a diagnosis of LBD. He has taken Spiriva with no problems and currently takes Symbicort, again with no increase in LBD symptoms (as far as we can tell!). It can be difficult to balance meds when there are other health conditions on top of LBD. I agree that consulting with a neurologist familiar with LBD is absolutely critical. I will say my husband's pulmonologist did a thorough literature search before prescribing for my husband so perhaps the best solution is have both physicians weigh in on the benefit/risk question.


Tue Aug 20, 2013 7:52 pm
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Joined: Thu Apr 21, 2011 9:07 pm
Posts: 247
Post Re: COPD and LBD
One additional suggestion: there are actually specialists in medicine and prescribing, and one of them might be a resource.

When my mother had some health issues a few years ago, before her LBD diagnosis, there was some dispute between radiologist, cardiologist and oncologist about discontinuing one of her meds temporarily. I arranged for a conference call with all of them and what they now seem to call an "interventionist" (used to be called a clinical pharmacologist.) Also included her primary care doc, as he was the one who would write scrips and changes, and I try to keep him in the loop. The interventionist came up with a good evidence-based resolution, and everyone agreed. I have also used one a couple of months ago when hospice suggested a change from seroquel to a different antipsychotic that would be contraindicated in LBD, and I thought simply increasing her seroquel (she was on a pretty low dose) might be the better strategy. The interventionist agreed.

This is easier if everyone is in the same healthcare system, as we are, and also if there is an electronic medical record so everyone can see all the issues and talk about them.
You might ask one of the players - PCP, neurologist, pulmonologist - if they have an interventionist/ clinical pharmacologist resource person (note: this is an MD, not a pharmacist, though they can often be very knowledgeable too.)

Laurel

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Laurel - mother (97) diagnosed April, 2011, with LBD; died May, 2014.


Mon Aug 26, 2013 12:09 am
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