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 Can Exelon patch increase delusions and hallucinations? 
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Joined: Fri Jul 26, 2013 4:29 pm
Posts: 15
Post Can Exelon patch increase delusions and hallucinations?
My 91 year old mom has been on the Exelon patch for about four weeks now. But her delusions, hallucinations and fear have gotten significantly worse over the last three weeks. Has anyone had an experience where Exelon actually made matters worse for their LBD loved one?


Wed Jul 31, 2013 2:30 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Can Exelon patch increase delusions and hallucinations?
I think Exelon works mainly on cognition, although my husband's combative behavior improved when he first started the Exelon patch in 2007. I'm not sure it ever helped with his delusions and hallucinations. Seroquel has been the best drug for him in that department.

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Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Wed Jul 31, 2013 3:31 pm
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Joined: Sat May 25, 2013 3:53 pm
Posts: 251
Post Re: Can Exelon patch increase delusions and hallucinations?
Seroquel was the drug that helped with my mother's hallucinations also.

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Gail, Forum Moderator & daughter of Doris who passed away Dec. 2010 after living with LBD for 7 years.


Thu Aug 01, 2013 12:46 am
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Joined: Fri Jul 26, 2013 4:29 pm
Posts: 15
Post Re: Can Exelon patch increase delusions and hallucinations?
Thank you very much, mock turtle and gailabbi. Do you mind if I ask how old your LO's were when you gave Seroquel? I am a bit extra cautious since my mom is 91 years old. But I do have her primary and one neurologist recommending a low dose trial. A second neurologist recommends increasing exelon. Thank you very much for your thoughts on this!


Thu Aug 01, 2013 7:20 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Can Exelon patch increase delusions and hallucinations?
My husband was 82 when he was started on it.

_________________
Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Thu Aug 01, 2013 8:45 pm
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3345
Location: Vermont
Post Re: Can Exelon patch increase delusions and hallucinations?
My dad was 90 when he started taking Seroquel. and it helped him with pretty severe anxiety and anger. It at least took the edge off most of the time.
Lynn

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Fri Aug 02, 2013 9:55 pm
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Joined: Sat May 25, 2013 3:53 pm
Posts: 251
Post Re: Can Exelon patch increase delusions and hallucinations?
My mom would have been 84 when she stayed on Seroquel 25mg/1 per day. It was tried and then discontinued earlier but when the hallucinations were too hard to handle the Dr. kept her on it and it did help alot.

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Gail, Forum Moderator & daughter of Doris who passed away Dec. 2010 after living with LBD for 7 years.


Mon Aug 05, 2013 4:01 pm
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Joined: Thu Apr 21, 2011 9:07 pm
Posts: 247
Post Re: Can Exelon patch increase delusions and hallucinations?
I'd say go for the seroquel.
We also found that the half-life was such that she really needed it 2x per day as when the first dose wore off, you could tell.
Also, they are tiny pills and before she went into special care, sometimes one would get dropped, and not taken, and you could always tell! One time she refused to use the bathroom because there was a body on the floor and she had to wait for the police investigation. I crawled around under her chair and sure enough, there was the seroquel on the floor under her chair.
Laurel

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Laurel - mother (97) diagnosed April, 2011, with LBD; died May, 2014.


Wed Aug 07, 2013 4:49 pm
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Joined: Sun Jun 23, 2013 12:17 pm
Posts: 5
Location: Massachusetts
Post Re: Can Exelon patch increase delusions and hallucinations?
My MIL is 88 and currently on a very low dose (12.5 mg) of Quetiapine/ Seroquel; we haven't noticed any bad side effects, and it has helped tame the hallucinations considerably. She is also on a low dose of rivastigmine (generic form of Exelon - pills, because she couldn't afford the patch). Every now and then she asks me what that pill is for. I tell her it's to help her think and remember things more clearly, and invariably she replies "well it's not working!" :lol:


Fri Aug 09, 2013 1:50 pm
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Joined: Sat May 25, 2013 3:53 pm
Posts: 251
Post Re: Can Exelon patch increase delusions and hallucinations?
One thing about Lewy - there's always a smile if you look for it! And one of the best ways to lighten the load! 8)

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Gail, Forum Moderator & daughter of Doris who passed away Dec. 2010 after living with LBD for 7 years.


Sat Aug 10, 2013 11:44 pm
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