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 No Tylenol PM! 
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Joined: Mon May 07, 2007 7:57 pm
Posts: 24
Location: Capital Region, NY
Post No Tylenol PM!
This might be old news to many on the forum (I'm brand new), but we recently learned that Tylenol PM should not be taken by those with LBD. It contains benadryl which is anticholinergic.

My Mom's PCP recommended that she take Tylenol PM instead of the prescription sleeping aid she was on, and her new neurologist told her to get off of it immediately. Her PCP was very surprised, but glad to be made aware of the contraindication.

Take good care everyone!


Mon May 07, 2007 8:27 pm
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Joined: Sat Apr 07, 2007 1:56 pm
Posts: 54
Location: Florida
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Hello Freeflowing....

Welcome. I'm also relatively new here and faced the exact same problem. My husband was recently diagnosed with LBD and is addicted to sleep medication. When I learned that the Benadryl he was taking is contraindicated for LBD, I immediately took him off of it, but I needed a "replacement" because he wouldn't go to sleep unless he took something. I received very good advice right here in this forum and got some small Vitamin C tablets which I told my husband is the new sleep medication recommended by the pharmacist. It worked and is working. It's been a couple of weeks now and he's been sleeping like a baby.

Good luck with your Mom.

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Marilyn


Wed May 09, 2007 8:25 am
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Joined: Thu Jan 18, 2007 11:38 pm
Posts: 65
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Hi, I've been reading with great interest all the talk about Benedryl. My father who was diagnosed with LBD in October had been taking Benedryl for a long time - he also was taking ambien. His primary kept giving him sleeping pills. My father kept thinking he had a sleep problem. What we discovered was that he was going to bed at 6 and waking at 3 - he was getting in a full 8 hours but his schedule was all out of wack. In July we had gone to the memory clinic and while they did not diagnose him with LBD at that time they said absolutely no more benedryl or sleep medicine. He has REM sleep disorder. Even after I had thrown all of that stuff away he still would get sleep prescriptions and buy benedryl. Now he is in assisted living and does not received any of these things. I believe that his primary - due to lack of interest (I had tried to talk to him about these problems) helped my dad decline as quickly as he did. I also wonder what it is about LBD that makes benedryl something they want, need or turn to - is there a connection that we are all missing?

Kani


Wed May 09, 2007 10:04 am
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Kani0621 wrote:
is there a connection that we are all missing?

Kani


Dear Kani, After reading your post, I guess I never really thought of it before but my Husband also used Benendyl many times, I don't really know the connection but I am thinking as we all know that Benedryl has a sleep effect on many people.That this may be an escape to the person taking it knowing something is wrong with them but not knowing what!
Does that make any sense?


Wed May 09, 2007 5:15 pm

Joined: Thu Jan 18, 2007 11:38 pm
Posts: 65
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It does Irene. My Dad knew something was going on for quite awhile although he wouldn't admit it. Perhaps this was his way of compensating and avoiding. It certainly gives one pause that's for sure...
Kani


Wed May 09, 2007 7:06 pm
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Joined: Mon Feb 05, 2007 3:43 am
Posts: 215
Location: Seattle, WA
Post 
Sleep disorder is part of DLB, and in the US, it's easy to self-treat, even if the drugs are horrible.

Medication for sleep is not always a problem for people with DLB; some people get really good relief with the various Rx agents. A neurologist or sleep medicine specialist might be a better choice than an internist.

E

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Cal is not the real name of a real 84 year old with DLB. I don't speak for LBDA, nor do I have clever initials behind my name, so information is provided without warranty. Caveat everybody. I blog at http://PragmaticCaregiver.blogspot.com


Sat May 12, 2007 6:37 pm
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