Dad has been drooling for a few years but within the last 6 months it has increased A LOT! Last week the nurse from his AL home called and said Dad was experiencing a lot of mucus. It was so bad she was wanting clearance to order his Robinul to help with it. Of course I went to the "no-no" list for LBD patients and when I didn't find it I looked it up. It stated Robinul was prescribed for stomach ulcers not mucus. I called back and asked the nurse if she had the right med and she said that Robinul was also used to stop secretions. Has anybody else had this experience? I said yes but now Dad has declined rapidly this week and I just want to rule out that I made a bad decision to okay this med. Thanks....

Robinul is an anticholinergic [synthetic] so would probably be inadvisable. I would consult his neuro, if he has one. My husband's incessant drooling was helped by an increase in Sinemet.

TxLady130,

I replied to your question here:
viewtopic.php?f=1&t=3315

Robinul (love that name!) is an anticholinergic. Since your dad isn't walking at the present time, it might be OK to try this medication. He needs to be observed very closely though as there are plenty of other bad side effects (besides impairing walking ability). My personal (layperson) view is that anticholinergic meds are fine to give near the end of life as the comfort they can bring is key.

Robin

TxLady, it sounds like you are super conscientous about monitoring your dad's care. You are doing your best. Please accept that "best" includes some trade-offs. No med is risk free, and even "safe" choices can be wrong for certain individuals. My point is you must not beat yourself up over decisions you made in good faith, even if later you wished you'd made a different decision. Act in love, based on what is known at the time, and move forward. It is all any of us can do. Fortunately, it is enough.