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 Suspicions confirmed 
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Joined: Fri Dec 31, 2010 3:07 pm
Posts: 1039
Location: Minnesota
Post Suspicions confirmed
I've been wondering whether Coy's current "new" symptoms are a result of an increase in sinemet or whether he might be coming down with something. On Monday I thought the "coming down with something" a strong enough possibility that I had him started on an antibiotic. Today I am sharing many of his symptoms (except, I hope, confusion and cognitive decline -- although in trying to work today my ability to concentrate barely registered on the meter.) Since I don't think drug side effects are contageous, I'm going to conclude that we are both simply sick. I hope it is just a matter of days before we are both back to our respective baselines.

I'll keep an eye on Coy's behaviors and consider decreasing the sinemet if he continues with problems after he's well.

I sure wish we both had a caregiver tonight!

_________________
Jeanne, 68 cared for husband Coy, 86. RBD for 30+ years; LDB since 2003, Coy at home, in early stage, until death in 2012


Thu Sep 29, 2011 12:13 am
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Joined: Tue Aug 17, 2010 9:20 am
Posts: 184
Location: So Cal
Post Re: Suspicions confirmed
Oh, Jeanne,
What to do when the caregiver needs care?? So sorry and hope you feel better soon! Sher

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Sher (53) married 29 years to Ken (66) who was diagnosed with LBD in 2008, but it most likely began many years before.


Thu Sep 29, 2011 1:11 am
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Suspicions confirmed
Jeanne, I'm sorry you are not well! :cry: Take care!

_________________
Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Thu Sep 29, 2011 1:15 am
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3426
Location: Vermont
Post Re: Suspicions confirmed
Feel better soon, Jeanne. At times like that I just want to cry out "I need my mommy!" I hope you have good friends like mine, who will make a pot of chicken soup and bring it over. Has happened a few times in the past couple of years, and I am so thankful for good friends since most of my family live hundreds of miles away. Lynn

_________________
Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Thu Sep 29, 2011 9:36 am
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Joined: Mon Feb 14, 2011 10:22 pm
Posts: 191
Location: Portland, Or
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Jeanne, I hope you feel better soon! I am very fortunate to have sisters and granddaughters who are able to come over and help with my mom when I'm ill. So far that hasn't been necessary very often, but it's nice to have that option if needed. I've had both my sister and my oldest grandchild ( she's 20) come over and spend the day with me to learn the routine. It's something I would recommend to every care giver, after having to keep getting out of a sickbed to help the person who was here to take care of my mom while I was sick! :lol: After that experience my sister came over and made herself more familiar with the routine so we wouldn't have to repeat that particular nightmare ! She also spent the week with us during my mom's recent hospitalization and her 1st few days at home, which was wonderful! I got some much needed rest that week.
Ellen

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Ellen 59, caregiver for mom Marion 82, dx LBD Feb 2011


Thu Sep 29, 2011 12:21 pm
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Joined: Tue Aug 30, 2011 1:36 pm
Posts: 48
Post Re: Suspicions confirmed
Hope you got some sleep and are feeling better, Jeanne, and that you and Coy will both be up to your usual activities soon.

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Donna G, 52, helped Dad take care of Mom, who died at home surrounded by family in June 2012.


Thu Sep 29, 2011 1:03 pm
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Joined: Fri Dec 31, 2010 3:07 pm
Posts: 1039
Location: Minnesota
Post Re: Suspicions confirmed
An overdue update. I was sick 4 weeks. Coy was (not urprisingly) sick longer. We finally went in to his doctor. His lungs were clear. She felt his tiredness and weight loss were lingering effects of the illness. She herself had had it and it lasted 4 weeks for her, too. Ugly stuff.

We are now more than a month past that. I'm concerned about Coy's low weight but at least he isn't continuing to lose. At 5 tablets of Sinemet his drooling was well controlled and his gait pretty good, but he had more cognitive issues. He is now on 4 tablets. It is really hard to judge these things, isn't it?

He is also on 2 tablets of Provigil, up from the 1.5 he took for years. I was hoping that would help his daytime alertness, but it is not clear that is has.

A nasty virus of 4 weeks duration no doubt took a lot out of him. It is still hard to say if he is experiencing permanent decline or after affects of illness.

_________________
Jeanne, 68 cared for husband Coy, 86. RBD for 30+ years; LDB since 2003, Coy at home, in early stage, until death in 2012


Sat Dec 10, 2011 3:43 am
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Joined: Tue Mar 29, 2011 3:02 pm
Posts: 386
Location: East TN
Post Re: Suspicions confirmed
so glad both of you are over that bug….

that bug cost you a real Cajun home cooked dinner….

maybe next time….in the Spring….

_________________
Craig - Patient - Male - 56 years old - Lewy Bodies diagnosed on March 23, 2011 - cognitive disorder NOS dx 2007 - RBD REM dx 2007 issues for 20+ years - intention tremor 1974 - other issues many years


Sat Dec 10, 2011 9:29 am
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Joined: Wed Mar 02, 2011 1:04 pm
Posts: 251
Post Re: Suspicions confirmed
Glad you are feeling better Jeanne and Coy too.....The bug has made it down here and I've got it now.....I've heard it takes a long time to get over - have terrible laryngitis and cough - saw doc yesterday and got antibiotics....Hoping hubby doesn't get it....
Best wishes,

Tonya

_________________
First symptoms in 2000 at 35 yrs old. LBD early onset dx 2-17-2011 at age 46.

' "I try not to worry about the future, but rather to "wonder"....and "wonder" is one step away from "awe" '......From a wise friend........


Sat Dec 10, 2011 1:07 pm
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3426
Location: Vermont
Post Re: Suspicions confirmed
Feel better, Tonya. I had the stomach/ache all over thing recently which lasted 2 weeks. I can empathize and I'd make you some chicken soup if you were near like my friends do for me when I got sick! Guess I'll have to send you some cyber-chicken soup, Lynn

_________________
Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Sat Dec 10, 2011 7:32 pm
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Joined: Wed Mar 02, 2011 1:04 pm
Posts: 251
Post Re: Suspicions confirmed
Thanks Lynn - that's so sweet!
Best wishes

_________________
First symptoms in 2000 at 35 yrs old. LBD early onset dx 2-17-2011 at age 46.

' "I try not to worry about the future, but rather to "wonder"....and "wonder" is one step away from "awe" '......From a wise friend........


Sat Dec 10, 2011 8:45 pm
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