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Does aroma therapy work if you can't smell?
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JeanneG
Joined: Fri Dec 31, 2010 3:07 pm
Posts: 1037
Location: Minnesota
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 Does aroma therapy work if you can't smell? In an article by Dr Ott, sited by Irene in another post today, he suggests that non-drug therapies be tried first for LBD, including music therapy and aroma therapy. Don't most LBDers lose their sense of smell? Do you have to be able to smell for aroma therapy to work, or does just inhaling the molecules trigger something? Inquiring minds want to know. 
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Jeanne, 66 caring for husband Coy, 85. RBD for 30+ years; LDB since 2003, Coy still at home, in early stage
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| Sun Jul 10, 2011 5:21 pm |
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irene selak
Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1941
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Re: Does aroma therapy work if you can't smell? I have never heard anything about Aroma Therapy helping one way or another , now I will say that music therapy was a good thing for us as the TV became a problem and I really was sure that the music really calmed many of the fears for my husband.
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Some forum members may be intense in sharing what they have found to be useful/recommend certain resources.While meaning well, some comments may seem rather strong. Please contact me with any concerns.
Irene Selak
LBDA Forum Moderator
http://www.lbda.org
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| Sun Jul 10, 2011 7:39 pm |
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Tonya
Joined: Wed Mar 02, 2011 1:04 pm
Posts: 242
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Re: Does aroma therapy work if you can't smell? Jeanne,
I don't know if this fits for everyone with LBD, but my sense of smell fluctuates a lot (as does my vision and hearing) - some days I can't smell much at all (which isn't all bad lol) and some days I smell things seemingly normally or maybe too strongly....So I am still using some "relaxing moments" glade plug in air fresheners in the house...I don't smell them everyday - but when I do, I find it very pleasant.....don't know if that helps....
Last fall however, I went through a longer period of not smelling anything...I thought it was gone for good - but maybe it was coincidence, I'm not sure, but I had a root canal done in November and it seemed like after that I starting getting my smell back...it was a tooth near the sinuses so who knows...it was not abscessed, but it needed it....Not sure if it was just Lewy fluctuation or the tooth had something to do with it - I actually suspect fluctuation......Fluctuation of nearly everything seems to be the hallmark of Lewy for me.....
Best wishes,
Tonya
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First symptoms in 2000 at 35 yrs old. LBD early onset dx 2-17-2011 at age 46.
' "I try not to worry about the future, but rather to "wonder"....and "wonder" is one step away from "awe" '......From a wise friend........
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| Thu Jul 14, 2011 11:05 am |
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robin
Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
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Re: Does aroma therapy work if you can't smell? Tonya,
I do think the sense of smell fluctuates for others with alpha-synuclein disorders. Another example I heard last week is that someone with Parkinson's Disease couldn't smell but after DBS (deep brain stimulation) surgery his sense of smell returned for several years.
Robin
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| Sun Jul 17, 2011 6:18 pm |
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BayouCajun
Joined: Tue Mar 29, 2011 3:02 pm
Posts: 386
Location: East TN
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Re: Does aroma therapy work if you can't smell? I used to have an intense sense of smellâ¦.
animalsâ¦.perfumesâ¦.all kinds of things that didn't bother othersâ¦..
I have noticed that latelyâ¦.it is the oppositeâ¦.others ask me if I smell something disgustingâ¦.butâ¦.I smell nothingâ¦.
food doesn't taste as good eitherâ¦.
don't hear as wellâ¦.
fingers don't feel as wellâ¦
don't see as wellâ¦.unless seeing double is better...
but, then some things work better than they did beforeâ¦.aggravation, pain, dreamsâ¦
back to your original questionâ¦.interesting conceptâ¦.
if I don't think I am smelling itâ¦..would I get the affectâ¦â¦
seems possibleâ¦..if the particulates cause something to happen that is not connected to the actual 'smell' it seems possibleâ¦.
orâ¦.am I still smelling itâ¦.and my brain is losing the signalâ¦.so the same affect might happenâ¦.
I guess it would depend on 'where' in the signal pathâ¦.the affect would take place and where it is being interruptedâ¦
is it my decreasing 'smelling' that is affecting my decreased sense of 'taste' right nowâ¦.or is it something else?
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Craig - Patient - Male - 56 years old - Lewy Bodies diagnosed on March 23, 2011 - cognitive disorder NOS dx 2007 - RBD REM dx 2007 issues for 20+ years - intention tremor 1974 - other issues many years
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| Sun Jul 17, 2011 6:44 pm |
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