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 Discontinuing the Exelon Patch 
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Joined: Tue Aug 17, 2010 9:20 am
Posts: 184
Location: So Cal
Post Re: Discontinuing the Exelon Patch
Pat, After some doing I finally convinced our Dr. that Ken did better on the lower dosage, and that is how it remained until we discontinued it. We re-introduced the full 9.6 mg at one point and his 'overdrugged' behavior returned. I mentioned that to several Neurologists during our many appointments for testing, etc. and all of them replied that Exelon had never had any documentation to the sort, but I know what I know and I know my husband's behaviors best. Sher

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Sher (53) married 29 years to Ken (66) who was diagnosed with LBD in 2008, but it most likely began many years before.


Sat Mar 26, 2011 9:58 am
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: Discontinuing the Exelon Patch
Sher,
I just was looking through the RX drug site and I stumbled onto the overdose section and I have included that for you to see also and perhaps for your Ken the high amount is an over dose ???? Just food for thought !




http://www.rxlist.com/exelon-drug.htm

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Irene Selak


Sat Mar 26, 2011 10:57 am
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Joined: Sat Jul 31, 2010 5:28 pm
Posts: 317
Post Re: Discontinuing the Exelon Patch
There is a warning with every patch of Exelon that you should not apply more than one patch as application of multiple patches has caused several deaths. I guess that would be an overdose. Nan


Sat Mar 26, 2011 4:27 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Discontinuing the Exelon Patch
When Derek first went into the SNF, one day I noticed that his old patch had been left on with the new one applied! :shock: Of course, I cautioned them about it and it hasn't happened since. I think the problem was that they were doing the chest and upper arms as well as his back [as per the instructions] and they just didn't see it. I told them that for years I had just been using his back and working across from left to right, top to bottom and always cleaning the spot where the old one was taken off. They've been doing it that way since--it's easier for them and it's less apt to get missed.

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Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Sat Mar 26, 2011 5:27 pm
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: Discontinuing the Exelon Patch
Nan,
Yes I realize that but my point was because the LBD'ers has such issues with all kinds of drugs perhaps the higher dose reacts like a overdose.

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Irene Selak


Sat Mar 26, 2011 5:53 pm
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Joined: Sat Jul 31, 2010 5:28 pm
Posts: 317
Post Re: Discontinuing the Exelon Patch
I was responding to the comment that someone's doctor made that he had never heard of an overdose with Exelon. I think death is probably an overdose. But you are right, Irene. What is a moderate dose for one person is too much for another. There are overdoses even with standard dosing. Everone metabolizes a little differently. The older you get, the more the standard dose for a younger person becomes too much for an older person.

Smiles, Nan


Sat Mar 26, 2011 9:03 pm
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Joined: Tue Aug 17, 2010 9:20 am
Posts: 184
Location: So Cal
Post Re: Discontinuing the Exelon Patch
Irene,
I'm not sure that what Ken did with the higher dosage was the same as overdose (and isn't all of that just plain scary?). He would kind of just shut down, in a different way than usual, that probably only I could detect. When we lowered the dosage that didn't happen. BTW re: leaving the patches on- it happened to Ken several times when he was in the nursing facility. One nurse would put one on his arm without removing the one on his back and visa-versa. It makes me wonder how patients without family to monitor them live through the many mix-ups that seem to happen in these facilities. One day at a time! Sher

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Sher (53) married 29 years to Ken (66) who was diagnosed with LBD in 2008, but it most likely began many years before.


Sun Mar 27, 2011 12:42 pm
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3305
Location: Vermont
Post Re: Discontinuing the Exelon Patch
Sher - good point. For many years I've believed that a person in a hospital needs an advocate with them 24/7 or as much as possible. Care facilities, same thing. We can't be there all day every day, but checking up on our LOs care in their new "home" is essential. Even the best of places have screw ups in meds, care, you name it. We have to advocate for the best care they can possibly get, and we need to politely make our wishes and expectations known to the facility. Lynn

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Tue Mar 29, 2011 10:58 pm
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