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 Use of Neurologist(s) 
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Joined: Fri Dec 31, 2010 3:07 pm
Posts: 1039
Location: Minnesota
Post Re: Use of Neurologist(s)
mockturtle wrote:
And if they keep their TV on, as a lot of them seem to do, it will drive him crazy


I have promised my children that if they ever put me in a facility where I hear other people's televisions blarring all day that I will find a way to come back from the afterlife and haunt them mercilessly.

The small town "care center" that two of my elderly aunts reside in has only single rooms. They are small, but at least they are private.

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Jeanne, 68 cared for husband Coy, 86. RBD for 30+ years; LDB since 2003, Coy at home, in early stage, until death in 2012


Wed Mar 09, 2011 3:04 am
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Use of Neurologist(s)
mockturtle wrote:
Maybe I'll just reverse-mortgage the house, instead!
When I could see Florida property tanking badly a couple of years ago ... I did that. Our house was appraised at twice what an appraisal would be today. I think it was a smart decision.

When Dale was first having delusions and hallucinations, the neurologist we found was the best of the bunch. The others wanted to give Dale tranquilizers. Seroquel did well for us and I thought the neurologist knew his business.

However, within the last three months, it has been obvious that this neurologist was not listening. Dale was failing and the suggested medical treatments made the situation much worse. I lost respect for him.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Wed Mar 09, 2011 4:53 am
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Joined: Sun Aug 29, 2010 5:46 pm
Posts: 610
Post Re: Use of Neurologist(s)
I have made an appointment with Dr. Chad Yucus, who was recommended by another poster here. He's a geriatric neurologist and reportedly is very good with LBD.

Despite several requests, I did not hear from my mother's PCP before or after her recent visit with my mother at the SNF. My sister and I have noticed a huge upswing in the frequency of my mother's anxious episodes (which my sister says remind her of panic attacks in severity). My nurse practitioner niece and my second year resident niece both insist that she needs a neuro consult. We all agree that my mother shouldn't have to endure these episodes and her meds need to be re-evaulated.

Since I can't get the SNF or PCP to take this seriously (DON refuses to administer Ativan even though my mother has tolerated it well the past, PCP has not other ideas), the only recourse is to get a consult with a specialist who may be able to sort this out. The soonest I could get her in is April 20th and that day cannot come soon enough.

Julianne


Sun Mar 13, 2011 12:40 pm
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3396
Location: Vermont
Post Re: Use of Neurologist(s)
Oh Julianne, I am so sorry. I'm assuming you've asked them to put you on their cancellation list, just in case they do get a sooner opening. It's terrible to have to wait for these appointments when you see your LO going downhill and have no other alternative for help. Lynn

_________________
Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Sun Mar 13, 2011 1:21 pm
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Joined: Sun Aug 29, 2010 5:46 pm
Posts: 610
Post Re: Use of Neurologist(s)
Yes, Lynn, I have requested that, but this doctor is coming to a satellite clinic where he goes only twice a month, so there are already enough patients ahead of her that it's unlikely to happen. At least it's a step forward.

The PCP and SNF seem to think that everything is just fine. I know the staff has seen my mother become hysterical--they have even called to let me know--but I guess to them it is not a big deal, and they still won't administer Ativan to her because the DON says she might fall. I guess that would look bad when the state visits! Too bad my mother gets to pay the price for their CYA attitude. It is very frustrating.

Julianne


Sun Mar 13, 2011 1:33 pm
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3396
Location: Vermont
Post Re: Use of Neurologist(s)
Is it possible for you to have a conference with you, the DON, & your mom's dr. so you can voice your concerns to the whole team, and possibly come up with a "team" solution? If your mom is a fall risk, they should make sure she has a walker, an aid with her, a wheelchair or whatever it takes. Denying her meds that could help her because they are trying to CYA is unconscionable, IMHO. I don't think her dr. would be too happy about this either. Your mom deserves to be comfortable emotionally too. Good luck. I know what it's like to have to fight city hall over these issues. Lynn

_________________
Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Sun Mar 13, 2011 3:13 pm
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Joined: Sun Aug 29, 2010 5:46 pm
Posts: 610
Post Re: Use of Neurologist(s)
Lynn,

I could try that while I am awaiting the neuro appointment. My mother already ambulates with a walker and falling is not currently a concern.

True, my mother's emotional welfare should not be sacrificed for the SNF's safety record. Initially when the Ativan order was written, the doctor chewed out the SNF for not administering it, but nothing changed. The doctor has a lot of patients at this SNF so I suppose she has to consider her working relationship with the DON, but again, I don't that should be at the cost of my mother's emotional welfare. For that matter, decent SNFs are few and far between around here, and I try not to poison my relationship with the staff because I want my mother to stay there, but again, it's not right to knuckle under at the cost of her welfare.

Julianne


Sun Mar 13, 2011 3:55 pm
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3396
Location: Vermont
Post Re: Use of Neurologist(s)
I certainly understand the political tightrope you have to walk. Been there, done that. Keep the faith, Lynn

_________________
Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Sun Mar 13, 2011 11:41 pm
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