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 Tylenol PM forbidden? 
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Doctors.... Robin
robin wrote:
Is there any way you can change MDs?
The visiting nurse suggested that we talk with Dale's PCP on Monday. I will do that. The two men have adjacent offices in the same building - but I don't believe they are friends.... just colleagues.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Sat Feb 26, 2011 4:41 pm
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Joined: Sat Oct 06, 2007 4:28 pm
Posts: 697
Location: LA
Post Re: Tylenol PM forbidden?
Leone, when an angry outburst erupts, such as the divorce thing, don't assume he is speaking to you. His mind could have wandered ... where??? Who knows??? Never doubt that he loves you dearly and always will. DrP


Sat Feb 26, 2011 5:15 pm
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Tylenol PM forbidden?
But is there any way you can change to a new neurologist? Find someone who is more knowledgeable about treating sleep problems.


Sat Feb 26, 2011 5:32 pm
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Joined: Wed Oct 28, 2009 11:53 am
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Location: Ocala, FL
Post Dale's mind - Dorthea
dorthea wrote:
Leone, when an angry outburst erupts, such as the divorce thing, don't assume he is speaking to you. His mind could have wandered ... where??? Who knows??? Never doubt that he loves you dearly and always will. DrP
You are quite right, Dorthea. I am his second wife and I know that much of what he talks about has nothing to do with me. In fact, he often thinks he lives in the 2-story house where he and his late wife raised their children. She did want a divorce and it broke his heart.

He also tells me often that he loves me.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Sat Feb 26, 2011 5:53 pm
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Tylenol PM forbidden?
Finally...... Dale's PCP decided to help us and has given Dale the Klonopin I requested. I will pick it up today.

Can I use it with the Seroquel? In what combination?
I am by-passing the neurologist.


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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Mon Feb 28, 2011 3:13 pm
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Joined: Sun Aug 29, 2010 5:46 pm
Posts: 609
Post Re: Tylenol PM forbidden?
Leone, that is great news! I sure hope it helps.

Have you tried discussing drug interactions with your pharmacist? I don't suppose they are all this good, but the pharmacist who owns our local pharmacy has been just excellent at these sorts of questions, including doing the research when he wasn't sure. Anyway, it's just another resource if you aren't confident about, or cannot obtain, your physician's advice.

Julianne


Mon Feb 28, 2011 3:56 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3175
Location: WA
Post Re: Tylenol PM forbidden?
Leone, I agree with Julianne 100%. Pharmacists know so much more than do doctors about drugs and their interactions. And their computers are set up to red flag any possible conflict with other meds or with the patient's medical history, allergies, etc. Provided, of course, that the pharmacist has all of Dales's meds in his records.

_________________
Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Mon Feb 28, 2011 3:59 pm
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Location: Ocala, FL
Post Re: Tylenol PM forbidden?
Since Dale has taken Seroquel so long - a year and a half, I've been buying the Seroquel from Germany.... so our local Pharmacy will not have that in their records. I'll ask anyhow.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Mon Feb 28, 2011 4:17 pm
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Location: Ocala, FL
Post Re: Tylenol PM forbidden?
Just to complete this thread... for the benefit of others, Dale took Clonazepam (Klonopin) 1 mg combined with Seroquel 100 last night and he slept peacefully for the first time in several weeks. There was no talking and we both had a full night of rest. Thankfully, Dale's PCP agreed with my request for the Klonopin and ordered it for us.

Nothing else worked this well. We tried Xanax and that only increased the nighttime talking.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Tue Mar 01, 2011 9:35 am
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Tylenol PM forbidden?
Dr. Boeve in the Continuum paper discusses using these meds together. If you haven't reviewed it recently, you might do so.


Tue Mar 01, 2011 3:16 pm
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Joined: Wed Oct 28, 2009 11:53 am
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Location: Ocala, FL
Post Boeve's papers
Yes, Robin, I know..... and that was good enough for me. It is apparent that our neurologist has not read Boeve's papers. No doubt he should. It would have saved us a lot of grief.

Actually, what makes me additionally irritated is that I made copies for him of the entire set of Boeve's papers!
:twisted:

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Tue Mar 01, 2011 4:09 pm
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Joined: Wed Dec 30, 2009 1:46 pm
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Location: WA
Post Re: Tylenol PM forbidden?
Leone, surely you don't expect the doctor to read anything you give him, do you? Sometimes I think some doctors don't even read the patient's chart. In fact I know they sometimes don't.

_________________
Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Tue Mar 01, 2011 6:57 pm
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Joined: Sun Aug 29, 2010 5:46 pm
Posts: 609
Post Re: Tylenol PM forbidden?
Read the chart, Pat? Next you will be expecting them to take our phone calls!

Julianne


Tue Mar 01, 2011 9:05 pm
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Joined: Fri Jan 15, 2010 9:33 pm
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Location: Vermont
Post Re: Tylenol PM forbidden?
Or respond to emails - God forbid!!! Lynn

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Tue Mar 01, 2011 9:09 pm
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Joined: Sun Aug 29, 2010 5:46 pm
Posts: 609
Post Re: Tylenol PM forbidden?
E-mails? Do doctors get e-mails? Not mine! At least not that they admit.

Julianne


Tue Mar 01, 2011 9:15 pm
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