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 Clonazelam 
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Joined: Sat Aug 14, 2010 1:07 am
Posts: 8
Post Clonazelam
Hi,
I have not been on the forms in a few months. My father-in-law is doing much better. We have placed him in an assisted living facility. He is very happy as we are. I just took him to his regular doctor yesterday and we are waiting for a referal to see Dr Ringman at UCLA. His doctor has prescribed clonazelam for his sleep disturbance. Has anyone used this medication. and what are the pros and cons

Thanks
Carol


Wed Feb 09, 2011 12:12 am
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Joined: Fri Dec 31, 2010 3:07 pm
Posts: 1039
Location: Minnesota
Post Re: Clonazelam
We've used Clonazepam (Klonopin) for about 30 years. I think that it is a pretty standard treatment for Rem sleep Behavior Disorder (RBD).

For us, here are the Pros:
1 It works. It greatly reduces and usually eliminates completely the acting-out-dreams behavior.
2 I am no longer black and blue in the morning. I am no longer considering separate bedrooms.
3 My husband does not injure himself flinging himself out of bed.
4 My husband experiences no side effects.
5 If he takes it, it works for that night. If he doesn't, he acts out his dreams that night. If he takes it the next night, it works again.
6 Insurance covers it (although in the early days it had to be justified by the doctor).
7 It is not huge or hard-to-swallow (for someone with normal swallowing function.)
8 It has continued to work at the same dosage for all that time.

For us, here are the Cons:


:lol:
Carol, I'm glad the ALF is working well for your FIL. Let's hope for an extended period of smooth going.

_________________
Jeanne, 68 cared for husband Coy, 86. RBD for 30+ years; LDB since 2003, Coy at home, in early stage, until death in 2012


Wed Feb 09, 2011 12:35 am
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Clonazelam
Yes, clonazepam (Klonopin) is standard treatment for sleep problems. It doesn't sit well with everyone, however.

Have you read Dr. Boeve's "Continuum" paper published in 2004 on a standard treatment regimen for LBD symptoms? You can find the paper on lbda.org.

You can get good info on prescription drugs from websites such as rxlist.com or drugs.com.


Wed Feb 09, 2011 2:31 am
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Joined: Sun Aug 29, 2010 5:46 pm
Posts: 610
Post Re: Clonazelam
My mother used clonazepam for three years or so before her diagnosis (though now I realize she had LBD for at least that long) and it worked wonderfully to resolve her anxiety. It was discontinued by the neurologists at the major teaching hospital when she was there for a workup and got her LBD diagnosis (not sure why--I wasn't aware of it until she had been discharged so I didn't have a chance to ask).

Now she is in an SNF and her local doctor has prescribed Ativan (not sure why the change) PRN for anxiety because she gets upset and cries on a regular basis. But sadly, the DON refuses to have it administered. We have discussed it and she says it is too much of a risk for dizziness and falling (my mother is still ambulatory with a walker). I informed the doctor, who called and talked to the DON, but no change. I do try to pick my battles with the DON so I am biding my time with this issue, but I wish my mother could just go back on clonazepam.

Julianne


Wed Feb 09, 2011 9:51 am
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Joined: Sun Jun 24, 2007 5:35 pm
Posts: 344
Post Re: Clonazelam
Carol, my husband cannot tolerate Klonopin. It dulls him intellectually and in his personality. Makes him groggy and unfocused. It also can be habit forming and require increases in dosage to be effective.
So for some of us, it just is not worth the price.
Glad it works for many, though.
Pat

_________________
Pat Snyder, husband John, dx LBD 2007
Author of [i]Treasures in the Darkness: Extending Early Stage of LBD...[i][/i] [url]http://www.amazon.com/Treasures-Darkness-Extending-Alzheimers-Parkinsons/dp/1466428228/ref=sr_1_1?ie=UTF8&qid=1334092686&sr=8-1[/url]


Wed Feb 09, 2011 5:02 pm
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Joined: Fri Dec 31, 2010 3:07 pm
Posts: 1039
Location: Minnesota
Post Re: Clonazelam
Pat, were you using this at bedtime only, for RBD, or for one of its other uses?

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Jeanne, 68 cared for husband Coy, 86. RBD for 30+ years; LDB since 2003, Coy at home, in early stage, until death in 2012


Wed Feb 09, 2011 5:28 pm
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Clonazelam
Dale's PCP just allowed him to have Klonopin. What do I need to know about using it with Seroquel? I posted this on another thread .... but thought it might be missed there. I need input, please.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Mon Feb 28, 2011 3:33 pm
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Joined: Sat Jul 31, 2010 5:28 pm
Posts: 317
Post Re: Clonazelam
Leone, I Googled Seroquel and Klonipin taken together and I get an answer from wikianswers that it can be taken together and is sometimes prescribed that way. On an other thread the person said everyone she had sees taking both together were kind of like zombies. But then that would probably be in the daytime and you are just using it for sleep. You may want to Google it yourself and read more. Good luck, Leone. I have my fingers crossed for you that you will have found the answer to Dale's sleep issues. Here's for a GOOD NIGHT'S SLEEP!!

Smiles, Nan


Mon Feb 28, 2011 5:45 pm
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Joined: Fri Dec 31, 2010 3:07 pm
Posts: 1039
Location: Minnesota
Post Re: Clonazelam
Leone, I saw your post early today, but I was not able to login -- kept telling me I wasn't on file. :oops: What did you wind up doing?

FYI, Coy takes 100 mg of Seroquel and 2 mg of Klonopin each night, immediately before bedtime.

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Jeanne, 68 cared for husband Coy, 86. RBD for 30+ years; LDB since 2003, Coy at home, in early stage, until death in 2012


Tue Mar 01, 2011 12:31 am
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Clonazelam
I am happy to report that the combination of Seroquel and Klonopin (Clonazalam) worked a miracle last night. Dale slept peacefully all night and so did I. I wished I had pushed harder to have this medicine before. It means, of course, that he can continue to sleep in our bedroom with me.

He is still sleeping this morning and I feel competely rested for the first time in 2 or 3 weeks. He had been talking before he went to sleep and I was concerned at first, but the talking stopped as the drug began working.

Thank you for your interest, Jeanne.

_________________
Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Tue Mar 01, 2011 6:41 am
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Joined: Sun Aug 29, 2010 5:46 pm
Posts: 610
Post Re: Clonazelam
That's great news, Leone! You must be so relieved.

Julianne


Tue Mar 01, 2011 9:05 am
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Clonazelam has brought peace
It has been a very quiet day. I got so accustomed to hearing Dale's incessant talking and calling for me that I hardly know how to react to such a quiet house.

He has slept after every meal and much of the time in between. He was and is totally delusional. I didn't expect that to change but I didn't expect so much sleeping. He is very calm and content. I have not seen him this peaceful in several weeks. Before, he was wadding up his bedding and moving about as his 'awake dreams' demanded. All that anxious agitation is gone now.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Tue Mar 01, 2011 7:34 pm
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Joined: Fri Jan 15, 2010 9:33 pm
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Location: Vermont
Post Re: Clonazelam
A good night's sleep AND a quiet day! You must be in heaven! Lynn

_________________
Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Tue Mar 01, 2011 7:36 pm
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Joined: Fri Dec 31, 2010 3:07 pm
Posts: 1039
Location: Minnesota
Post Re: Clonazelam
Leone, that is interesting. I wonder if now that he can sleep he is making up for lost time. It will be interesting to see if he becomes more wakeful after he has had several good nights sleep.

_________________
Jeanne, 68 cared for husband Coy, 86. RBD for 30+ years; LDB since 2003, Coy at home, in early stage, until death in 2012


Tue Mar 01, 2011 9:35 pm
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Clonazelam
Since his 'awake' behavior is so problematic for both him and me, I am not looking forward to a change, Jeanne. Dale is in Palliative Care ... which will lead to hospice. He is completely bedridden now.

In the brief times when he talked with me today, he made very little sense. He said we were supposed to get dressed and go to a party. I told him I would bring the ice cream and cake.... and then I brought some to him which he enjoyed. After he ate the cake, he wanted to go to sleep again.

_________________
Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Tue Mar 01, 2011 10:05 pm
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